MyApnea is a network created by people with sleep apnea to empower others like us to get the answers we want and need through sharing and promoting research. MyApnea offers sleep apnea patients and caregivers the opportunity to LEARN more about apnea and effective treatments, SHARE experiences with other members of the community, and contribute to RESEARCH to improve diagnosis, management, and treatments for sleep apnea. MyApnea is what's called patient-powered research. Keep reading
There are three main sections of MyApnea. One section has information and resources about sleep apnea to help you LEARN more about the disorder and how best to manage symptoms. Another section offers different ways for you to connect and SHARE with others within the MyApnea community. The third section is a RESEARCH portal, which allows consenting members to participate in research with the aim of improving sleep apnea care and treatments. Keep reading
Membership in MyApnea is open to any person who has been told by a doctor that they have sleep apnea or who has a concern that they have sleep apnea, and who wants to share and learn from others to shape future research and treatments. Caregivers of family members with sleep apnea will also be able to join and help their loved ones participate. To SHARE with others within MyApnea, we will ask you to sign up by providing your name, email, password, and birth year. Keep reading
It's easy — just sign up with your username, email, and password. You can then visit and explore the community pages to learn more about sleep apnea and to talk with other people like you. If you want to join the patient-led research community, you will need to read and sign the informed consent before you can join the RESEARCH portal. Keep reading
The goal of MyApnea is to actively engage thousands of people with sleep apnea to share health information needed for research to improve the health and wellbeing of people with apnea. To collect your information, we need your permission, which you give by signing the consent form. Keep reading
Ideally, we want you to: Answer the study's health-related questions Check in regularly so we have your most up-to-date information Let us know which other studies and special invitations you want to participate in Participate for at least 2 years so we can track how your health changes over time Keep reading
If you agree to participate in the MyApnea research portal, you will be asked to complete a series of surveys about your sleep, symptoms, and health. The surveys will ask about things such as when you were diagnosed with sleep apnea, treatments you have used, medical illnesses such as high blood pressure, and your energy level. The basic survey will take less than 30 minutes to complete for most people. Keep reading
You will be asked to update information on these surveys every 2 to 6 months, or as your health changes. You'll also receive occasional special invitations to participate in other studies or take special surveys, depending on your specific health status. The surveys will usually give you an estimate of how long it'll take to complete them, so you can choose to take them when most convenient for you. Keep reading
We take your privacy very seriously and will do everything we can to protect your information and keep it private and secure. We will do our best to make sure that the personal information we collect about you is kept private and secure. Your information will be transmitted and stored using very secure systems. Keep reading
