Forum · Dayglowdean

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[-] IndependentOcherManatee9453 +0 points · almost 3 years ago

I had late onset Granmal Seizures 40,s Did all of the tests and medications I had so many seizures they knew my mobile home layout I would stop breathing completely I finally got diagnosed with central sleep apnea. I got the bi-level machine and my quality of life sucks,taking provigil to get at least some time awake,I do have to take pain medication I know it doesn't help my sleep apnea. Before you tell me that's my problem it's not. This has been a long road for me, I am pretty broken up from car, and motorcycle accidents a hemorrhagic stroke, I can't take NSAIDS because of the blood thinners, and various other medical issues. I am hoping there has been some advancements in treating this miserable curse, I would rather go more chemotherapy, than have CSA it's ruining my life. I tried every mask made and it made no difference,I am a mouth breather so my teeth are rotting away at a rate that I can't even keep up with, I am going to try another round of sleep studies in the hope there are better options than taking drugs to try and get 4-5 hours of somewhat alert time, before I have to take a nap.

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[-] MakeSleepAPriority +0 points · almost 3 years ago

Welcome! You have a compelling story.....I think it might be noticed more if it were posted in the Central/mixed apnea topic. You can copy and paste your post there using the "comment" feature at the bottom of the posts or you can leave it here and see if it gets noticed. If you have any questions about it just click the question mark at the bottom of this page and send a message to the support team. Always glad to help. And once again, WELCOME to MyApnea.org

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[-] Rohit +0 points · almost 3 years ago

Hello OP, sorry to hear about the issues you are having. Do you know if the bi-level machine was able to alleviate your apneas significantly?

In selected people with CSA with poor response to CPAP or bilevel, a newer device called adaptive servoventilation (ASV) may sometimes be of benefit. Caveat being there is a dearth of studies assessing ASV in people with CSA who do not have heart failure.

You may discuss with your provider with a detailed knowledge of your history and comorbid conditions whether, in their opinion, you would be a good candidate for this therapy.

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