Forum · eqpt supplier- 'don't worry about your numbers- you don't need to know all that'

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[-] StraightforwardCeriseAlligator6641 +1 point · about 1 year ago

work w lincare- i want to see my 'numbers' on my asv machine- beyond ahi and hours used. i asked supplier about this early on ( when i started w c-pap, then bi-pap). i thought their response was a bit dismissive- like i was being a bother to them. true- i have had diff. getting a mask , headgear that works for me- and then going back to them to try to come up with better fit etc. i think that is just being proactive- not a pest. why would a supplier not want a patient to be able to view specifics on their machine- i am not asking to 'tweek' settings- that would be equivalent to 'self-medicating'. i just want some adequate feedback. any thoughts on this out there?

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[-] wiredgeorge +1 point · about 1 year ago Sleep Enthusiast

Well, they are in the business of setting a machine based on the numbers prescribed and perhaps you should insist on talking to the Sleep Doc who recommended the numbers for an interpretation or your PCP who received the numbers and did the prescription for the equipment. I didn't ever see my sleep doc either at the sleep study in his clinic or even later. I had to bug them to send me a copy and then had to try and figure out what things meant. My PCP is a great gal but not up on sleep study tech and my equipment company had pretty much the same attitude yours does... I use Apria because that is one of the equipment providers my insurance takes. Getting the right mask took some putting my foot in the door and just being persistent. Good luck and self educate!

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[-] DanM +2 points · about 1 year ago Sleep Enthusiast

Hi StraightforwardCeriseAlligator6641. Wiredgeorge makes a good point about the equipment providers. They are generally in the business of providing the equipment and supplies, and they usually provide the details of treatment to insurance providers that require it and sleep physicians who request it. I have found that it is very rare for the equipment providers to provide data directly to patients. I encourage you to contact your sleep physician to talk about how things are looking. Many users here on the Forum have downloaded Sleepyhead software and have learned to look at their data through that software. And congratulations on being proactive with your mask fit. Proper mask fit is probably the most important factor in successful treatment. Best wishes, and keep us posted on your progress!

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[-] cem1960 +0 points · 21 days ago

Hello wiredgeorge & DanM!!! My father has been using a Cpap for almost 12-15 years. The last one he has is the ResMed S9 AutoSet. he lives in Bogota, Colombia and he was diagnosed by a pulmonologist here and bought the first machine and started using it and it was great. Now, he is 88 years old and lately he has been feeling tired and his general doctor made all the analysis and sent him to the pulmonologist to check if it was the way the cpap was calibrated... and we are like... plop.... the doctor didn´t want to check any of the data, he sent him to a therapist that said that it needed to be cleaned and maintained but nobody says nothing about the data. I saw in the forum that I can download a software (it didn't let me do it in the mac, I will try in Windows) but how do I read the data. what do i need to know? I have google everywhere but I can´t find answers... can you help me? PLEASEEE!!!

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[-] wiredgeorge +0 points · 21 days ago Sleep Enthusiast

Well... not sure how to answer. The S9 doesn't send information via cell phone tower which you can then look at on the ResMed website. I think the S9 has an SD card. Get a USB SD card reader and download some 3rd party software. Since I don't use the software, not sure how to run it or interpret but I would say the most important data is hours of use and AHI... that tells you how many times a person stops breathing per hour.

In any case: https://sleepyhead.jedimark.net/ is download location. There seems to be a MAC version as well as unix and Windows.

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[-] cem1960 +0 points · 21 days ago

Thank you very much for your quick response. I will try to download the software and check the numbers you are telling me!!!

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