Forum · I feel worse then before

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[-] DiligentWhiteSeaUrchin9053 +0 points · 13 days ago

So I was snoring for some years, but just 6 months or so ago I started waking up tired. After a couple months of this I went to the doc and ultimately to the sleep doc. Did the testing - severe apnea, 77 times per hour, etc. Started CPAP and feel just as bad if not worse then before.

I've been on CPAP for 2 months now and I sleep with it for 7 hours each night. The docs say it is working great - almost completely eliminated apnea. I have no issues tolerating the machine and I have no problems falling asleep. But I still feel terrible. I wake up a number of times at night, some long, some short. 5 minute after wakening I'm completely congested and stay that way til noon. I fall asleep in front of the TV, etc. in the evening. It is effecting my work because I am tired all the time. And irritable and have trouble focusing at times. I have no other health problems (had 2 hip replacements a year ago) and I take no medications.

Anyone have any ideas? The doc says I'm doing great but I'm not. All they say is give it time.

Any ideas?

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[-] wiredgeorge +0 points · 13 days ago Sleep Commentator

resmed airsense and aircurve machines send in data that you can monitor; the other way to monitor is to download some sleepyhead software and dump your SD card into your laptop or computer and either way, you will have the numbers that allow you to track your therapy. "docs say it is working great" doesn't provide you with the info you need to manage your own therapy. You may also want to buy a pulse oximeter and monitor both pulse rate and SPO2 and see where your oxygen levels stay over the night. Something ain't right and allowing others to tell you things are fine BUT you feel bad do not line up. Good luck.

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[-] DiligentWhiteSeaUrchin9053 +0 points · 13 days ago

Wiredgeorge: What should I be tracking? I have an Airsense 10. It tells the docs that there are very few instances of apnea and the docs say its working great. What should I be looking for? As for things not lining up, that's what I told the PA last week and his response was give it 2 more months. Thanks.

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[-] wiredgeorge +0 points · 13 days ago Sleep Commentator

There are software packages such as SLEEPYHEAD that allow the user to dump their SD card and you can view MUCH data regarding your sleep night. WIth the Airsense 10, you can go to:

https://myair.resmed.com/Default.aspx?redirectCountry=2

Sign up for an account and then you can see your nightly AHI, mask leaks, mask on/off occurances. You can view these things for not only the previous night but last 14 days. When YOU know these basic metrics, you can start modifying things to improve your own numbers. You are your best advocate during therapy and while a doctor can help you with your overall progress, you will be better served driving your own therapy. I find it odd that a ResMed Airsense machine was prescribed but the myair application was not mentioned to you.

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