Forum · Pediatric Sleep Apnea Surveys -- Patient feedback requested

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[-] mrueschman +0 points · almost 2 years ago

We are excited to launch new surveys that assess pediatric sleep apnea. Please take a moment to review the questions that we have pulled together that have been used extensively in other studies looking at pediatric sleep apnea. Let us know if any important issues are missing from the surveys. During your review, please keep in mind the following:

  1. These surveys are intended for parents/caregivers of diagnosed children ages 2-8 years old. After we successfully launch these surveys we intend to offer additional pediatric surveys that older children will be able to complete themselves.
  2. For many of the questions we will need to provide answer choices (like multiple choice) rather than have patients write in or explain their answers. This is often called “free text” in survey jargon and it is very difficult and time intensive to interpret these types of answers.
  3. The goal is to keep each survey around 10 questions, similar to the current set of surveys available on the site. Some of these surveys are a bit longer since there are group of questions that need to stay together to create a scale.

The surveys are linked below for your review. When referencing a specific question, please also include the name of the survey, e.g. "Your Child's Sleep Behavior":

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[-] Sherry +0 points · almost 2 years ago

ABOUT YOUR CHILD

What is your child’s date of birth? I assume that they will be able to fill in dates vs. check •YYYY/MM/DD

What is your child’s sex? I would think that "Other" could be deleted without offending especially in a 2-8 year old. •Male •Female •Other:___________ •Prefer not to answer

ADDITIONAL INFORMATION ABOUT YOU I would think that would be a question about what relation the person completing the survey is to the child? Or many, the heading could say "Additional Information about the person completing the survey for child"

DAYTIME SLEEPINESS Your child seems tired --This question is confusing to me. What are the numbers for? It just lacks clarity. It does make more sense now that I have read Nighttime ...but since this one comes first, it needs the same instructions added. Usually (5-7) Sometimes (2-4) Rarely (0-1) Problem? Yes No N/A

During the past week, your child has appeared very sleep or fallen asleep during the following Sleep should be sleepy

YOUR CHILD’S HEALTH CONDITIONS Has a doctor or health care professional ever told you that your child had any of the following, check all that apply: Allergies Allergies is missing a box

YOUR CHILD’S SLEEP APNEA Either needs a Not Diagnosed option or better yet just a note which says complete only if your child has been diagnosed with Sleep Apnea. The options under During Sleep and During the day need to be lined up correctly.

If your child had a sleep study, how satisfied were you with the experience that your child had on the night of the study? sleep ? out of place

YOUR CHILD’S SLEEP APNEA TREATMENT (Again a note that says something like "Complete this survey only if your child has been diagnosed with Sleep Apnea.")

How satisfied were you with this treatment? (ques is prompted for each treatment) (Ques??? needs clarity)

YOUR INTEREST IN RESEARCH--Boxes aren't lined up.

CPAP company y Extra Y

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