BrightSpringbudSandpiper5105

Member since:

Feb 4, 2017

Number of posts:

30

Reply to Adjust the pressure ResMed Airsense 10
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

For pure CPAP and BiPap the settings by your ENT are the smart ones. If however they let you use an AutoPap/Autoset which my ENT did, then the machine basically sets itself to whatever is needed during the night. You really only set the range eg between 5 and 16 and it does the rest.

I bought my Airsense 10 in the US earlier this year and used it for a month there. Whilst it was sending the details back to Resmed there was no suggestion that it was being adjusted or set by them. I am surprised to hear that is even possible. I am a bit sceptical that they are remote controlling your machine. Big Brother is definitely watching, that is I did note that I could not turn off the transmitter so Resmed would get the data whilst I was in the US. Here in Australia the machine is not sending out anything to Resmed because the phone system is not CDMA. I would not be fussed if it did but they definitely do not control the settings here in Australia.

My machine provider in the US showed me how to set the ResMed machine (you can always convert an Autoset to a CPAP and the ranges). I doubt the machine is being re-set by Resmed, but if it is I reckon you can set it yourself anyway.

Reply to Using CPAP Machine for the first time and one nostril blocked
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Full faced mask is the simplest answer.

I have had 10 years of blocked nasal passages. Try Rhinocort (Australian brand name) which can really help if your blocked passages are due to "rhinovitus, allergies or other similar things. Using a humidifier helps too.

I also use a decongestant for 3 to 4 days in a row then have to stop for 3 to 4 days you cannot use them permanently. So I was alternating between nasal mask and full faced mask.

When I was recently on holidays in the US I discovered that I did not experience blocked nasal passages and used nasal mask for almost a month straight. I became suspicious that I am allergic to something in my bedroom. I bought a cheap air purifier 2 weeks ago and I have just had 4 days running with no decongestant and good nights sleeps and nasal mask only.

Reply to Central sleep apnea and Heart Failure
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

If you can, buy yourself a machine even a cheap one. That's what we have to do here in Australia, health cover doesn't cover much of machines (only 25% or so).

When I lost 20 kg it made not a jot of difference to my apnea but the machine has over time. I am finding the better the machine the better my apnea is becoming. I am about half way between my best and worst weight and my apnea has never been better.

Reply to When do you put the mask and machine on?
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Getting used to the mask is a good idea, most people would fall asleep whilst watching tv so it is a good idea to have it on if there is any chance of that happening.

I go to sleep around 5 minutes of putting on my mask which means I would only put it on to go to sleep. I do not read in bed with the mask on. I have never fallen asleep whilst reading. So if you are like me you'd leave the mask off whilst watching TV and put it on roll over and go to sleep.

Reply to Whats the lowest pressure someone can start at
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Either it is an autopap/autoset not a bipap or a bipap being used in a unique way opposite to what most people do. Each to their own. I use autoset and it definitely does go up and down during the night.

I was using 5 to 16 with a ramp up for years on a Resmed S9 autoset. In those days my 95% average was around 10 and peak was 14.

Using the Airsense 10 autoset I use 4 to 12 with a ramp up. Don't know why I used 12 but now my average is 5.7 for 95% of the night and peaks usually in the 10's. I have seen it peak at 12 very rarely but never for more than 3 to 5 minutes. I go to sleep easier with the 4 than the 5 and my apnea is better with the newer machine.

Having a good run at the moment and a recently acquired air purifier is helping to keep nasal passages clear (suggesting it is controlling allergies)

Reply to Thank you and a tip for cleaning mask in the am
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[-] BrightSpringbudSandpiper5105 +1 point · 8 months ago

Scentless baby wipes for me on my daily routine and an occasional full wash up of the mask. I simply hate all the cleaning I used to do before the baby wipes. Also if you use the wipes on your face and forehead where the mask touches it seems to make a cleaner seal and put less oil on the cushion requiring less cleaning.

The right mask is a personal choice and you do need to try a few if you can.

Good to hear conscientious having a big improvement. Hope it keeps going

Reply to Use of cpap question
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Hey Orphan I am currently running at around 0.8 at worst, 0.48 average and an occasional 0 too usually once a week at the moment. 10 years I was 8 to 10 and stopped breathing for sustained periods and I am pretty sure I never had a 0 in the first years. I am beginning to think that the latest technology is capable of keeping you really low and potentially at near 0 and almost trains you to be better. Either that or they intervene (if autoset) earlier, stay at the necessary level to avoid repeats.

I have Autoset/autopap and that literally means that some nights the machine doesn't even crank up. When I take off the nasal mask (which I sometimes do for a couple of hours in the morning, when I wake up after 6 to 7 hours of sleep, if I happen to fall back asleep I do snort and wake up suddenly so there is little doubt I still have apnea. The machine is controlling and minimising it.

Reply to Customized skin for cpap resumed airsense 10 auto set
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Another suggestion is not to have it on top of the side dresser and more out of sight (behind or underneath). Only problem I found is the filters seem to pick up more dust lower down on carpet or floor and need to be replaced more often.

For years I had my Resmed's on the floor below the bedside dresser draw. Mainly due to the older machines seemed noisier. The resmed 10 is on the top as it is quieter.

Reply to Could I be suffering from sleep apnea?
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

Only way to be sure is a sleep study. I never felt tired either. I did snore but my wife said I stopped breathing and occasionally I would fully wake up with a "start" so had a sleep study and it turned out I has severe sleep apnea. That was 10 years ago.

I wouldn't have called it an adrenaline rush (no accelerated heart beat) but the sudden waking up because you couldn't get air is a symptom I experienced. Better to be safe than sorry get yourself tested.

There are other things that could cause that and it worth getting it checked out anyway. For instance I have something called barrett's oesophagus. Nothing to do with apnea and I have woken up with an adrenaline rush from it when I used to get a sudden reflux. Was rare but scared me a lot more than waking from the apnea stuff.

Reply to Using Res Med Airsense 10 Auto with Go Zero Yeti 400
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

No is the short answer, I have only ever used mine off mains power. Using the inverter puts the Resmed power brick at risk and they are expensive to replace.

Personally I would have thought converting a 12v dc source through an inverter to a 110v a/c back through a power brick into the machine not to be that dangerous but I have heard that inverters do cause trouble with some switches, relays, and in particular dimmer switches.

With Resmed stuff I would stick to their official product for the powering as I can imagine their power brick could be temperamental because my brother has had to replace one.

Reply to My apnea is worse in my home bedroom and seems better elsewhere. What environmental factors can affect numbers of apnea events?
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[-] BrightSpringbudSandpiper5105 +0 points · 8 months ago

High everyone, I finally managed to acquire an air purifier machine 10 days ago after a couple of aborted attempts via ebay and have been using it ever since. Cost me just $AUD66 which is cheap and cheerful. Its ugly but effective.

For anyone who suffers from constantly blocked nasal passages I can report that so far so good. I have used my nasal mask solely since getting it.

The machine supposedly has 9 filters including HEPA and ozone etc. Whilst I am a bit of a sceptic about how wonderful the whole air filter/purifier thing is I do believe it is working better than I even hoped it would and helping my apnea. I have run it daily for a few hours at least and when I go to bed I no longer get the nasal passages blocking up as I lie down. (seems to indicate I was getting blocked nasal passages due to allergens) I have gone 3 nights in a row without using a Sinex nasal spray and the last time that happened was when I was on holidays in US in January.

My apnea continues to be extraordinarily improved this year since the trip to America and with the improvement from the air purifier I can say I am one of the lucky ones. Having had apnea at the low end of the severe scale for reasons I cannot explain I am now in the low range. I use my machine every night and whilst my results almost suggests I am "cured" and not suffering sleep apnea I know I do if I do not use the machine (as we tested it) I snort and stop breathing and snore.

My wife is still a big fan of the airsense autoset 10 to be a big improvement on the Resmed autoset 9.

Reply to SleepyHead software - do you use it?
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

I use sleepyhead because the ResMed program is expensive here in Australia. Has always worked well with the Resmed Machines

My first Resmed Machine came with the Resmed software but the second one didn't and the older version of software didn't work with the new machine so I switched to Sleepyhead.

I think the various software reports and results are written for doctors more than patients, but its great for a person like me that likes to read numbers and understand what is going on. I have never seen the website that talks about what all the data means. I can empathise with some of the feedback that it is a bit overwhelming how much info you get. I am still not sure what all the statistics actually mean despite reading all the definitions. My specialist hardly used the data when I gave it to him to look at. He likes to keep things simple. It is great to have that data to show the Doctors though.

Nevertheless the graph pictures on any of the software and Sleepyhead tell you a thousand words, you can see when you are going better than worse.

I don't mind having to pull out the SD card and slot it into my computer. The new Resmed was sending the data wirelessly to Resmed via a phone link which unfortunately doesn't work here in Australia.

I am a fan of Sleepyhead, never had any problems with the software or the site.

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[-] NiceChartreuseMonkey6211 +0 points · 11 months ago

I don't have a Machine I did take a sleep apnea for diagnosis

Reply to Severe Dry mouth.
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

As Dan mentions, if you are not using a full face mask give it a go. I only get a really dry mouth which is only sometimes when I use nasal and my nose blocks up. If I use the full face, dry mouth can still occur but is mild compared to the nasal version.

All my attempts to use chin straps etc just didn't work but the full face mask did the trick.

I have found you have to try different masks too to get one that does what you want. It can be costly but it is worth it to try alternative masks if you can figure out the one that works best.

Reply to Mask fit
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

I can only concur with the above comments about seeing your sleep doctor.

In regards to DanM's comments, the EPR function (as it is called on a resMed machine) is worth a go. I found it created a differential which avoids that feeling that there is no aiflow. Being able to use your APAP/CPAP/BiPAP is just as much about being comfortable.

Your doctor will be able to sort out whether you need more pressure or less but you will get the best out of the treatment if you are comfortable.

If you are allowed to try one, then you might give APAP a go. It is likely to give you that feeling of differential and be higher when you need it and lower when you don't

Reply to water level stays the same night after night
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

I have had 3 different Resmed machines all with humidifiers and whilst it is possible to switch the humidifier off it still used a little bit of water when you did so. The LCD advises if the humidifier is connect. I would turn up the humidifier setting to at least 4 (out of 5) to see if that gets it to kick in.

If you have it turned on then it is sounding faulty.

As an alternative there is a setting to warm up the humidifier before you start sleeping for the night, try that and as DanM said see if the base of the reservoir heats up (which is necessary to get the humidifier going).

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[-] WarmheartedApricotTapir8008 +0 points · 11 months ago

Thanks, I will check on the warm up setting. However, as I said in my reply to DanM, I'm not sure about the warmth of the plate. How warm is warm? Mine doesn't seem that warm, but I'll check again.

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[-] WarmheartedApricotTapir8008 +0 points · 11 months ago

I finally remembered to check the plate this AM but it was cold. Since last night was one of those nights that the water level didn't move, I'm assuming the whole humidifier wasn't working. I'll have to remember to check the plate when the water level changes. My humidifier seems to be part of the whole CPAP machine. The lights around the button work all the time. If I just turn the humidifier off and not even use it, air still has to go through it to get to the hose. Does that affect the pressure with no water?

Reply to novice to cpap and a question for a travel cpap
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

I currently us a ResMed Airsense 10 purchased 2 months ago and I have an old ResMed S8 Autoset which I use for travel (took it to USA on my recent trip where I bought the new machine near the end of that trip). I use nasal masks. I leave off the humidifier when travelling domestic in OZ to make it small and easy to pack. For 1 or 2 nights away I can cope without a humidifier although I always use one at home. I use the basic tube too, no need to heat the tube without a humidifier. I have a S9 which will probably become my travel machine from now.

By the way airlines in the US do not count your Apnea machine as carry on luggage and you can carry it on in addition to another carry on bag. So you could just take your Airsense 10 with you. As far as I am aware they don't do that in Australia but it never occurred to me to ask.

Rather than buy a travel unit, if you are trying to save space and pack it in the one case unfortunately although the Airsense 10 is a smaller case/pack than either the S8 or S9 as you know it is a combined unit with humidifier and bigger as a travel machine. Also I don't like to risk my current machine and am a lot happier with a cheaper one lest it get lost with luggage etc.

If money is no object I'd buy a new Resmed 9 (like the one I have) which lets you separate the humidifier and become really small for travel. If you are travelling for a week or longer I'd take the full set anyway.

Personally I'd pick up an S9 or S8 second hand on eBay (rather than new) and leave the humidifier at home using it as a travel machine. Because you use Resmed 10 you can be confident the S9 and S8 will work for you too.

Reply to Replacement mask and prescription
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

If this question is simply about will they sell you a mask then your original prescription that got you the machine will work, no need to update. If it is about claiming it on your US health insurer I haven't a clue.

I just use a letter from my Australian GP from 2008 when I purchased a machine in US in 2012 and for masks from US all the way until 2015 and it gets accepted in the US whenever I buy Apnea stuff. Never get a query about the letter.

I don't think prescription is the same as like when you buy drugs or a specific instruction to the provider. It can be written "to whom it may concern" more like a letter of reference. Grab one next time you see your GP.

I bought a machine recently in US and they accepted just an updated letter from my General Practitioner saying I still have sleep apnea and not a "prescription".

Absolutely no need for a further test or a specific prescription to get another mask is my view.

Reply to My apnea is worse in my home bedroom and seems better elsewhere. What environmental factors can affect numbers of apnea events?
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[-] BrightSpringbudSandpiper5105 +0 points · 11 months ago

My apnea still appears improved in the last 2 to 3 years which coincides with renovating, repainting, air conditioner and carpet replacement. Going to get an air purifier to clean out allergens and see if that improves things even more. We decided it is worth a try.

Now that I am analyzing my results it is clear my apnea has improved from being severe to being mild and whilst in America almost disappeared. I find that astounding.

Wife is a big fan of ResMed Autoset 10. She says it is much quieter.

Reply to Adjustable vs. Consistanant pressure?
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[-] BrightSpringbudSandpiper5105 +0 points · 12 months ago

If your doctor let you use auto then I think you can do either. I get the feeling here in Australia Doctors seem to let you use Auto or constant in most instances at your own preference it is definitely not dictated. Constant is more likely to be necessary and is recommended the higher your pressure. Personally I just can't sleep with CPAP. I don't think Doctors "prescribe" Autopap at all here in OZ they simply recommend what CPAP pressure would be the right one and give you the option of buying an AUTOPAP. An Autopap adjusts to whatever is required especially the RESMED's machines which are pretty sophisticated.

In other words everyone gets told what CPAP pressure is right and can use a CPAP but people that want to can use an AUTOPAP and if for some reason it didn't work for them they switch the AUTOPAP to a CPAP (which is an expensive way to do things here in Aust.)

In my family 3 of us have apnea. One brother of mine uses CPAP and swears by it, 2 of us use Auto.

What is for sure is that you should not just use the same setting as your mother. If you can pull out your data either from your study as recommended or from your Autosense data (using Sleepy head and a SD card) look at your 95% level and try the CPAP at that. If it works then I'd go with CPAP on your machine. Personally the Auto is quieter and is my personal preference. But as long as you have it set at least high enough CPAP does the job.

CPAP's are much cheaper than AutoPaps here in Australia (about 2/3rds of the cost) the same AUTOPAP machine that costs $883 in US dollars in the USA costs $1500 in US dollars here in Australia. In OZ A Resmed CPAP costs $1000 US dollars compared to $1500 US for the Auto and that saving of $500 USD influences many (note Australian insurers only give you $US300 back towards the machine so you are at least $US700 out of pocket and up to $1200USD out of pocket. I suspect that is more the reason why the CPAPs are more popular here.

Since you have a machine that works either way I'd give CPAP a try once you find out what the right level is.

Reply to How serious is my condition if I can't tolerate BIPAP therapy?
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[-] BrightSpringbudSandpiper5105 +0 points · 12 months ago

I use a Quattro Mirage when my nose is blocked and a mirage active LT when I am not. Anxiety over the mask itself is a tough one to solve. Getting used to it whilst being awake is a great suggestion. I agree that the higher the pressure the less useful a nasal mask will be and I suspect a pillow mask would be useless at those pressure. Nasal masks can cause you to open your mouth and air flows through. I just can't use pillow masks my nose gets blocked and I knock them off or end up breathing through my mouth.

Maybe lying on your back would make the full face mask easier to take. I am still mostly a side sleeper but I have trained myself to lie on my back if and when I need to. I used to be almost front on (a bit twisted) but I first changed my sleeping angles because I started to get back issues (not because of apnea). Putting a pillow between your legs stops you from turning over and keeps you more or less straight on your side. I find that putting a pillow under my knees keeps me on my back.

We get almost no insurance support here in Australia for Apnea machines and masks and they cost twice as much as in the US.

Try your best blizzard, and good luck. Hope you can train yourself to accept the full face mask sounds like you need it to make headway.