Ruby

I agree that trying a different pillow might help. There are also pillows made specifically for this issue but I have never tried one. They have a cut out on each side of the pillow that supposedly allows your mask and hose room and keeps them from being smashed into the pillow. I truly don't think there is anything that will always and forever help with mask leaks but maybe others have ideas that could help.

Thank you so much for the update on this! Is there a way I could talk to you via email about this? I have some questions that aren't technical in nature.

I'm not sure what happened to my post but here is a short version of it. Gremlin, questions and challenges are just as important as getting information. If no one ever set a challenge or asked questions then we would be back to where we were 20 years ago--with patients just accepting what the doctor tells them. Asking for information and receiving it is important and this forum helps in that area. But this forum is not just for telling others what works for us and what doesn't. It's a place to see what patients need and maybe a research area to help that need. If we don't complain, challenge, question, then nothing will change. You can't leave. Your posts are very welcome (I hope someone didn't tell you differently) and for me personally, I look forward to your humorous take on some of this. So I fully expect you to stay with us. I am quite serious about this!

See my post below. Please.

Good to be back, buddy. I do worry that some of my posts will be taken the wrong way. But then I'm not always taken the right way either.

Could a pretty pink collar and chain, securely shackled to the bedpost, become the latest craze for RBD sufferers? :O

Once upon a time, on an idyllic farm, the farmer's wife discovered that she was no longer as energetic or upbeat as was her wont. She took the horse and buggy to town to talk to her doctor. The doctor made her go to a "sleep clinic" for a "sleep study" where she spent the night being tortured by NOT sleeping. She was told that she had a strange disease that could only be helped by wearing a butt-ugly mask attached to a machine that spit out air into her face all night long. She cried. She kicked and screamed. "How, o how can I wear this thing to bed night after night? My husband will turn away in disgust!" Again she cried, this time into a phone to her friend. Her friend (a southern Princess in disguise) told her that she needed to think about her future if she did not use the machine. It might be a short one. As for the mask--"Why, darlin'! Just take that little ol' mask, add some sequins and feathers, wrap that ol' hose in Mardi Gras beads and sleep tight. You won't be using the dog-gone thing during "special times" anyway, bless your little heart." The farmer's wife did just that and they lived happily ever after. Mostly.

Try Gorilla glue on your gear instead. IF you are talking about CPAP headgear! Honestly--I love your outlook and humor.

OOOHHHMMM

So sorry you are having all these issues! Good to hear that the new meds are helping. As Sierra said, we aren't medical professionals here and so need to be careful about what we suggest but the SleepyHead suggestion is a good one. Just a question here and not meant to be critical but have you asked these questions of your doctor? I always wonder why people ask questions like these on here. Maybe to get a personal, been-there done-that answer to compare with what the doctor said or because they didn't ask the doctor. Regardless, forums like this can be so helpful and I hope you continue to let us know how you are getting along.

If anyone else has used this item, please let us know. I have the opportunity to meet the people from BleepSleep at the ATS meeting in May. Any information I can get before then would be appreciated.