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Tell me more about Jaw Surgery that hopes to cure. That is interesting.
I have been in the beauty industry for 34 years. I was diagnosed with Sleep Apnea in my late 20ies. I appreciate the "Pad A Cheek Strap Pads" which keep my mask from creating lines in my face while I sleep. Recently I began to notice some hair loss which caused me distress. My stylist and I came to the conclusion that the hair loss was mostly in the areas where my mask was strapped to my head. She suggested that I purchase a 100% Silk Scarf to wrap around the head straps. I sleep on 100% silk pillow cases, but it had never occurred to me to wrap my head straps in 100% silk. I found a 100% silk long silk scarf at a local thrift sale for $2. I brought it home and wrapped it tightly around all the straps that touch my hair. I am already noticing 2 things: a difference in my hair and that I keep my mask on longer each night. It has somehow made it more comfortable as well as helping the hair loss issue. Just wanted to share with my Sleep Apnea girlfriends out there!
DreamWear Mask is a game changer! I love it!
I would suggest that you have a sleep study to see exactly what is happening while you are sleeping. Sleep apnea and other sleep issues undiagnosed and untreated can be so dangerous to your health and the underlying cause of many issues. Once the exact diagnosis is clear, you will better be able to determine the best remedy. You certainly don't want to do anything that would mask your symptoms but not remedy.
I would agree with getting a second opinion! I had two most painful surgeries that did not work. There are those who are making recommendations for $$ vs making recommendations in he best interest of the patient. Choose clinicians wisely and check their reviews carefully!
Just discovered Phillips Respuronics DreamWear Mask last week and feeling so much freedom with repositioning of the hose!
I have hated and loathed my CPAP mask for the entire 20+ years I have been treated for sleep apnea. Granted that I feel so much better when I wear it. One of my major goals on life was to find an effective alternative to CPAP. Advances are being made but not quickly enough for me. However, last week I discovered a Phillips Respironics mask that has the hose attachment on the top of your head vs. the front of the mask. That little change has resulted in so much freedom from what used to feel like a cumbersome mask. Kudos to Phillips for this major breakthrough mask design.
My son has struggled with a full face mask and nasal pillows. We just discovered that Phillips Respronics has a mask that fits around your nose but does not have the pillows that go inside your nose. My son is having much better results with this mask.
Yes I use one by them called Dream Wear. It sits under the nose, does not go inside nose.
Wow! What an experience! I think I would be doing a revisit with my sleep doctor or maybe a new sleep doctor.
I found it interesting to look at my sleep patterns on a Fitbit which I just received as a gift for Christmas 2016. It tells me how many times I am restless and how many times I am awake during the night and for how long. I have discovered that I have to get in 8 to 9 hours to compensate for the minutes of restless and awake times throughout the night. A device that tracks your sleep patterns may give you more insights as to what is going on and why you feel tired under 9 hours.
What kind of CPAP Mask are you wearing?
Janette, thanks for sharing your story! I know it will raise the awareness of many. Keep sharing it and telling everyone about MyApnea.Org where there is great information and surveys. I find that the surveys are very insightful. I realized that my son had sleep apnea through working through a survey. Then we proceeded to a sleep study where he was diagnosed. I have been a sleep apnea patient for 25+ years. I have never heard of an eye stroke so you have raised my awareness. We just have to be in conversation about the risks of ignoring the symptoms or non-compliance of treatment in hope that we will make a difference in someone else's life.
Sherry, thank you very much for your reply. I'm glad that I can be of some help. Good luck to you and your son. I'm happy that I found this website. I actually heard about it on the radio because of the surveys. At least, now I can get some support from people who understand what I'm going through. Thanks again. <3
Wow Marjorie! I hope that you are able to get your sleep apnea under control. I know that there are many things are connected to having untreated sleep apnea. I was diagnosed in my 20ies and grateful.
Barbz, I am very interested in your results! Please do share!
Wow Bridget! I am seeing your post now but as I have scrolled back, I don't see an earlier post. Please do repost. I am not sure about the name either. We usually choose that when we register on this site?
wiredgeorge I am sure that you and your wife are sleeping better!
Ruth, finding the correct mask is the key to success. I would encourage you to call the Dr. or Medical Supply Company and ask for a re-fit and insist that it happen. Masks can usually be exchanged within a certain period of time. They should be able to let you try on several and find one that feels most comfortable. Once you find the right mask, there are cushions that can be used to keep it from digging into your face and make it more comfortable. I purchased mine at www.cpap.com under asscessories, cleaning and comfort and then skin irratation.
The pressure may not be correct for you. Any chance you could call to have them put you on their cancellation list so you could get in more quickly. I am sure they have cancellations on a regular basis that they try to fill. That is how my son got in on the same day he saw the Doctor.
FearlessWhteMouse, consider changing the direction of your fear to not getting a proper diagnosis. You may or may not have sleep apnea just as you may or may not have heart diease; however you want know the answer until you are tested. Both are just as deadly. I have a friend whose sister was like you in delaying the testing who passed away in her sleep; a single mom leaving 3 small children to find her the following AM when she didn't wake them for school. I hope you will call for a appointment today to get yourself tested!
Great informative interview Matt!