diannelamerc

Since they specifically say detailed data is sent wirelessly, I read it as "details won't be stored locally without an SD card". And they don't theoretically need to be, of course, if you as the patient aren't supposed to have access to it. (As seems to be true with my practice.)

The same way that, without knowing the clinical workaround, I couldn't adjust much of anything on my machine without calling and making a phone appointment and talking them into fixing the ramp time or the pressure or whatever. (Not that I'm going to mess around with settings I don't understand, but it's nice to be able to see what they are.)

I couldn't even see what pressure I was set at, they just said they'd make it "lower" for me. As I'm understanding, since they can both monitor and change settings remotely now, they seem in general to be actively be working it making it essentially a "black box" the patient just plugs in as instructed and then ignores.

We'll see, I guess.

Actually page 32 says "the AirSense 11 device has cellular communication which has the ability to automatically transmit summary and detailed data on a regular basis. It also allows you to change settings remotely", which is what they've been doing. And 33 says both summary/compliance and detailed data are sent via cell, which makes sense, because in the doctor's office she was talking about having access to far more data than I could get through the app.

But yeah, I've got an order in for an SD card and reader so that in the future I'll be able to read that extra data as well.

And I guess I was a little too overwhelmed setting everything up to catch the one place the SD card is mentioned in the user guide. It does say that "for machines where an SD card is bundled with the device" it will be already inserted. It also says it's sending both summary and detailed data to the clinician.

I love the 3-second hold to get to clinician mode though! (My machine never asked me which to use, and the guide has all sorts of comments on "if this feature is enabled for patient access", which nothing much seemed to be.) I'll be careful, but at least now I can find out what pressure it's set to and turn off the d*mn "auto start". I can also fix the time zone which is two off, presumably from wherever the company shipped it.

I appreciate the pointers to having a bit more control of the peripheral stuff myself.

Yup, got home, checked it: and there's no SD card in there. Spotted another YT video on the AS11's SD card and I didn't get the little SD card protector/instruction pamphlet thing they show that would have had it. By the comments it looks like leaving that out of the shipment is a fairly common thing.

So, are you saying the info my doctors are getting is just top-level summary stuff and the machine is dumping all the details? Oh, that's just great...

I've got an "AirSense 11" and all the data is sent directly to the office (and my insurance company, of course :eyeroll:) every day ("by Bluetooth"(?)--uh, how?), and I've got basically no control of anything without calling the office and talking them into changing pressure/ramp time/etc., but I'll check when I get home. Thanks!

I hadn't heard of it, but I've downloaded it now and started setting it up. Not sure if there's an SD card in my ResMed machine or where it is. I'll have to check the documentation and then get an SD card reader for my computer.

The tech running the CPAPs at the practice I'm in went over everything closely and pointed out that everything reads as it should--and sent me home with a data summary. Not sure what I could find that she couldn't, but I'm game to try to look at it.

My machine is already ramped and I'm having no problems with air pressure in or out.

(I found a thread like this by searching, but it was five years old and didn't help.)

Diagnosed with mild/moderate OSA, started on CPAP, and (once I got the right mask and got the tech to lower the pressure twice so I could breathe out) and--objectively--I've been doing fine. No problems with the mask, getting to sleep, staying asleep, waking up, or pulling at the mask. No leaks, apnea gone, yay.

But any night I sleep with it I end up feeling tired and worn out when I wake up. It's bad enough that I've been giving myself a night off about once a week just to catch back up. (If I sleep without it I wake up feeling fine--actually, more like "great" compared to how I feel after sleeping in it.)

Just had my 2mo follow up this morning and was hoping there was some adjustment to pressure or rate or who knows, something that would help. But my tech says everything's great. My scores (on the ResMed) are near-perfect. She basically said that there's no way for me to be sleeping solidly through the night with it the way I am and have it negatively affect my sleep.

Since I'm not having issues with the mask or waking up in the night or anything, she was left saying "fatigue can be caused by many things...". When I pointed out that the CPAP is the only thing I've changed and asked how my diet or the meds I've been on for three years now could be suddenly making such a difference night to night depending on whether I wear it, she had nothing. She left it at "try it for another three months and see how it goes".

I can't go three months more running this low on energy/sleep, especially when she admits there's no reason to think anything will change because the setup is "perfect" now. (I guess she's hoping I get used to being suddenly tired all the time?) Does anyone have a suggestion short of just giving up on it entirely? (Right now I'm kicking myself for even following up on my doctor's off-hand suggestion about getting checked for apnea in the first place.)