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The American Academy of Sleep Medicine (AASM) is currently working to update its clinical practice guideline on the Use of Home Sleep Apnea Testing (HSAT) for the diagnosis of Obstructive Sleep Apnea, in Children. This guideline will provide recommendations on when or how to use home sleep apnea testing devices for diagnosing children with obstructive sleep apnea (OSA). This guideline will have an important impact on standardizing physician practice and ensuring that patients get the best quality care.
AASM physicians are currently reviewing the scientific literature to update these guidelines; however, they also want to know what you think about the device if your child has undergone testing using HSAT:
o What do you think about Home Sleep Apnea Test devices?
o What are your preferences regarding in-lab testing versus home sleep apnea tests?
o What has your child’s experience with OSA been like?
o What are some of your concerns about home sleep apnea test devices?
We are reaching out to you, MyApnea.Org patients, to see if you are interested in contributing to this project as a patient representative. The AASM is looking for 2-3 volunteers; if you are interested, please get in touch! Sharing the patient perspective will allow AASM to develop a clinical practice guideline that is useful to both physicians and patients.
Who can volunteer?
Individuals who are caring for a child who was diagnosed with OSA by a home sleep apnea test.
If I volunteer to be a patient representative, what happens next?
You will complete a brief survey about symptoms and harms/benefits of different testing options.
You will attend webinars to learn about how we develop clinical practice guidelines.
You will join zoom calls with a task force of doctors and scientists specializing in children with OSA.
You will provide feedback on the clinical practice guideline document.
Your estimated time commitment will be between 14 to 18 hours over a two-year time period.
Who do I contact?
If you are interested or have any questions, please email Sarah Framnes-DeBoer (sframnes-deBoer@aasm.org). Thank you!
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posts. The information provided on this site is not intended nor recommended
as a substitute for advice from a health care professional who has evaluated
you.
