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gerardcarandang

gerardcarandang
Joined Feb 2023
gerardcarandang
Joined Feb 2023

The American Academy of Sleep Medicine (AASM) is currently working on a focused update of its clinical practice guideline on the Diagnostic Testing for Adult Obstructive Sleep Apnea. This guideline will provide recommendations on new devices and technologies for diagnosing adults with obstructive sleep apnea. This guideline will have an important impact on standardizing physician practice and ensuring that patients get the best quality care.

AASM physicians are currently reviewing the scientific literature to update these guidelines; however, they also want to know what you think:

o What do you think about Home Sleep Apnea Test devices?

o What are your values and preferences regarding in-lab versus home sleep apnea tests?

o What has your experience with OSA been like?

o What are some of your concerns about home sleep apnea test devices?

We are reaching out to you, MyApnea.Org patients, to see if you are interested in contributing to this project as a patient stakeholder. The AASM is looking for 4-5 volunteers; if you are interested, please get in touch! Sharing the patient perspective will allow AASM to develop a clinical practice guideline that is useful to both physicians and patients.

Who can volunteer?

  1. Patients (18 years of age or older) who have been diagnosed with OSA, or….
  2. Individuals who are caring for an adult who has been diagnosed with OSA.

If I volunteer to be a patient stakeholder, what happens next?

  1. You will complete a brief survey about what outcomes are most important to you when being diagnosed with OSA, and your experience being tested by diagnostic devices.
  2. You will provide feedback on the clinical practice guideline document during the public comment period once it has been drafted.

Who do I contact?

If you are interested, please email Gerard Carandang at gcarandang@aasm.org.

The American Academy of Sleep Medicine (AASM) is currently working to update its clinical practice guideline on the Use of Home Sleep Apnea Testing (HSAT) for the diagnosis of Obstructive Sleep Apnea, in Children. This guideline will provide recommendations on when or how to use home sleep apnea testing devices for diagnosing children with obstructive sleep apnea (OSA). This guideline will have an important impact on standardizing physician practice and ensuring that patients get the best quality care.

AASM physicians are currently reviewing the scientific literature to update these guidelines; however, they also want to know what you think about the device if your child has undergone testing using HSAT:

o What do you think about Home Sleep Apnea Test devices?

o What are your preferences regarding in-lab testing versus home sleep apnea tests?

o What has your child’s experience with OSA been like?

o What are some of your concerns about home sleep apnea test devices?

We are reaching out to you, MyApnea.Org patients, to see if you are interested in contributing to this project as a patient representative. The AASM is looking for 2-3 volunteers; if you are interested, please get in touch! Sharing the patient perspective will allow AASM to develop a clinical practice guideline that is useful to both physicians and patients.

Who can volunteer?

Individuals who are caring for a child who was diagnosed with OSA by a home sleep apnea test.

If I volunteer to be a patient representative, what happens next?

  1. You will complete a brief survey about symptoms and harms/benefits of different testing options.
  2. You will attend webinars to learn about how we develop clinical practice guidelines.
  3. You will join zoom calls with a task force of doctors and scientists specializing in children with OSA.
  4. You will provide feedback on the clinical practice guideline document.
  5. Your estimated time commitment will be between 14 to 18 hours over a two-year time period.

Who do I contact?

If you are interested or have any questions, please email Sarah Framnes-DeBoer (sframnes-deBoer@aasm.org). Thank you!

The American Academy of Sleep Medicine (AASM) is currently working to update its clinical practice guideline on the Treatment of Central Sleep Apnea (CSA). This guideline will provide recommendations for how to treat adults with central sleep apnea. This guideline will have an important impact on standardizing physician practice and ensuring that patients get the best quality care.

AASM physicians are currently reviewing the scientific literature to update these guidelines; however, they also want to know what you think:

o What do you think about the available treatments for CSA?

o What are your values and preferences regarding treatment?

o What has your experience with CSA been like?

o What are some of your concerns?

We are reaching out to you, MyApnea.Org patients, to see if you are interested in contributing to this project as a patient representative. The AASM is looking for 2-3 volunteers; if you are interested, please get in touch! Sharing the patient perspective will allow AASM to develop a clinical practice guideline that is useful to both physicians and patients.

Who can volunteer?

  1. Patients who have been diagnosed with CSA, or…
  2. Individuals who are caring for an adult with CSA.

If I volunteer to be a patient representative, what happens next?

  1. You will complete a brief survey about symptoms and harms/benefits of different treatment options.
  2. You will attend webinars to learn about how we develop clinical practice guidelines.
  3. You will join zoom calls with a task force of doctors and scientists specializing in CSA.
  4. You will provide feedback on the clinical practice guideline document.
  5. Your estimated time commitment will be between 14 to 18 hours over a two-year time period.

Who do I contact?

If you are interested or have any questions, please email Kelly Keeler (kkeeler@aasm.org). Thank you!