The American Academy of Sleep Medicine (AASM) is currently working to update its clinical practice guideline on the Treatment of Central Sleep Apnea (CSA). This guideline will provide recommendations for how to treat adults with central sleep apnea. This guideline will have an important impact on standardizing physician practice and ensuring that patients get the best quality care.
AASM physicians are currently reviewing the scientific literature to update these guidelines; however, they also want to know what you think:
o What do you think about the available treatments for CSA?
o What are your values and preferences regarding treatment?
o What has your experience with CSA been like?
o What are some of your concerns?
We are reaching out to you, MyApnea.Org patients, to see if you are interested in contributing to this project as a patient representative. The AASM is looking for 2-3 volunteers; if you are interested, please get in touch! Sharing the patient perspective will allow AASM to develop a clinical practice guideline that is useful to both physicians and patients.
Who can volunteer?
- Patients who have been diagnosed with CSA, or…
- Individuals who are caring for an adult with CSA.
If I volunteer to be a patient representative, what happens next?
- You will complete a brief survey about symptoms and harms/benefits of different treatment options.
- You will attend webinars to learn about how we develop clinical practice guidelines.
- You will join zoom calls with a task force of doctors and scientists specializing in CSA.
- You will provide feedback on the clinical practice guideline document.
- Your estimated time commitment will be between 14 to 18 hours over a two-year time period.
Who do I contact?
If you are interested or have any questions, please email Kelly Keeler (email@example.com). Thank you!