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Less sleepy after stopping cpap treatment

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varis37 +0 points · over 2 years ago Original Poster

Hello,

A little background. I have been using a cpap for maybe 7 years now. I have always had "residual sleepyness" despite using my cpap more than 90% of the time. I should also add that I tolerate my cpap well and it causes me little or no discomfort. I had a sleep study done and it suggests I have severe sleep apnea. I have a ResMed sleep apnea device.

Recently I noticed that I had far less day time sleepyness when I didn't use my machine for several days. My pressure was set between 10 and 15. I thought this was ok because my AHI score was typically around 0.5. I complained that I still had daytime sleepyness but my doctor concluded that my cpap treatment was working effectively after downloading the data.

To test what my baseline AHI score was i decided to put the machine on its lowest pressure setting of 4. This is below what should be helping me. I still had a AHI score of about 0.5, which is I believe very good. I've tried slowly turning my cpap pressure back up and long story short my AHI score seems to be independent of my pressure setting ie its always about 0.5. I also started to feel sleepy durning the day again once my max pressure got above 8.0 or so.

I also have a Fitbit. The Fitbit suggests that my sleep quality is about the same no matter if I use the CPAP or not ie i get plenty of Deep/REM sleep and O2 variations seem low.

Anyone know what could be going on? Is it just time to get a new sleep study done?

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Sierra +0 points · over 2 years ago Sleep Patron

You may want to download OSCAR and look at the data yourself. If you really are having no apnea at lower pressures it may be worthwhile to get another sleep test.

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Biguglygremlin +0 points · over 2 years ago Sleep Enthusiast

I've always been wary of sleepiness assessments because they are largely subjective and can be very dependent on outlook and activity levels and incentives etc. Not to say that the sleepiness in not real and doesn't need a solution but perhaps what was happening during those several days without the CPAP was enough to change the 'norm' for a short while.

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varis37 +0 points · over 2 years ago Original Poster

Thanks for you comments. I'll try downloading the program you suggested and looking at the data. I agree that assessing the level of sleepiness is subjective. But the reduction in the level was pretty dramatic and I repeated the experiment by increasing the pressure on my CPAP until I felt significant daytime sleepiness again. It could just be a coincidence but at this point I'm thinking its not.

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Sierra +0 points · over 2 years ago Sleep Patron

The issue with a CPAP is that they are not the most comfortable thing to use. They usually become more uncomfortable if you need a higher pressure or if pressure is changing by a lot during the night. And, if pressure is too low they are uncomfortable too. A setting of 4 cm to me makes me feel like I am suffocating. The pressure needed to control the apnea is the over riding factor of course, but within the range it is controlled the hope is there is a sweet spot where the pressure is not too low or too high. I have found that once I found the pressure I needed I have switched my machine to a single fixed pressure instead of letting the machine adjust pressure during the night in Auto mode.

I think if you can control apnea at 4 cm pressure, you may want to consider a fixed pressure of 6 cm or so -- whatever you find comfortable. But, to tell if you can get away with no pressure at all, you would need to get a sleep test. There are take home versions that are a lot more convenient and comfortable to use than the in lab tests.

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IntuitiveSalamander +0 points · over 2 years ago

I have sleep apnea and I can't sleep without a CPAP machine.

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