We've updated our privacy policy.

Biguglygremlin

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

Biguglygremlin
Joined Nov 2018
Bio

Male aged 60+

Overweight

Very Severe Apnea

CPAP user since June 2014

Resmed 9

Pressure <12>

Nasal Pillows

Philips Nuance

RLS PLMD PTSD CFS RBD

Australia

Hi kitty

Thank you so much for your post.

How did you manage to find this thread?

I had more or less given up finding any meaningful responses from people with RBD.

I am sorry that you have to deal with these things at such an early age.

It's interesting that you too have linked the head injury to childhood 'nocturnal epilepsy' and RBD.

The only theory I can offer is that we are all unique and perhaps the disposition towards childhood nocturnal disturbances is genetic but most children grow out of them.

I think it takes a particular type of trigger or injury to cause long term damage that leads to RBD as an adult.

It also seems (hopefully) that if the damage has a physical cause (like head injury) then it is not the same thing as the disease process which starts at the base of the brain and eventually causes Parkinson's Disease.

I also had a head injury as a young child followed by violent nocturnal episodes.

I managed to stop the episodes for many years although something like Periodic Limb Movement Disorder continued through the decades until I was in my 50s and I started launching myself out of bed. The Longest Sentence

I am certainly not qualified to offer any advice on your circumstances kitty other than that it is virtually impossible to die by choking yourself but if your actions are violent enough you need a safe environment to sleep in without dangerous objects nearby.

A partner who enjoys rough and tumble in the early hours would be a definite advantage too. :)

Have you consulted any specialists or tried any medications?

If so I'd love to hear what they advised or if they worked.