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When your apnoea is bad,m bot being well treated and you are burned out

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Gogol +0 points · 25 days ago Original Poster

Did your apnoea ever get so bad that you felt pretty much burned out? I mean, beyond tired, beyond exhausted even?

What strategies did you use to recover?

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Sierra +0 points · 25 days ago Sleep Enthusiast

Can you give us a bit more information. How long have you been on CPAP therapy? What kind of AHI numbers are you getting? Is your mask working well, not leaking or keeping you awake at night? How many hours of sleep are you getting at night? Any naps during the day?

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Gogol +0 points · 22 days ago Original Poster

Hi Sierra

Sure :) I have been on PAP for 11 years. I was getting <5 until a year ago but since then anywhere from about 3 on a good night to over 25 on a bad one. This was caused by cutting benzodiazepine medication prescribed for a c0esisrting sleep disorder, Periodic Limb Movement.

The mask is not leaking badly but I think the air is just blowing out of my mouth. They raised the pressures to 10-20 from 6-17 to try to get the AHI down. I should get some more data tomorrow when I see the sleep doc.

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Sierra +0 points · 22 days ago Sleep Enthusiast

A couple of suggestions. Have you considered using SleepyHead to view your detailed machine data? It requires a machine compatible with SleepyHead (most ResMed and Phillips Respironics machines are), a PC or Mac, and a SD card reader. Some links to look at.

SleepyHead Download

SleepyHead Basic Manual

As for air leaking out of the mouth, I have had that issue too. I have doing the mouth taping trick to stop it, and it seems to work very well. Here is a video to look at on mouth taping. It is not really uncomfortable at all when you get used to doing it.

How to Get a Better Sleep with Mouth Taping

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sleeptech +0 points · 20 days ago Sleep Commentator

Autoset machines, which is what you have based upon the pressure range you report, often get confused by PLMs (periodic limb movements) and increase the pressure unnecessarily. Increasing your pressure range is not going to help with you PLMs at all. In fact, the best course of action is usually operating in fixed pressure mode to prevent the machine from adjusting itself inappropriately. Your data from the period immediately prior to ceasing your medication should give a guide as to what pressure should work, although a new study would give the most reliable result.

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