I think my CPAP story is a good one. I was diagnosed with Sleep Apnea in 2005 after noticing how tired and inept I was the fall of 2004. I was working as the Library/Media guy in a large middle school and noticed that fall that I was really tired, wanting to nap on the way to school in the morning, taking 3 hour naps on Saturday and Sunday. I noticed I could not learn anything new. I had no problem solving abilities or creativity like I usually relied on. I was forgetting how to do parts of my job and I had prided myself on a good memory. Over Christmas break, I noticed also how depressed I was and that made me see my doctor right after Christmas break. When I explained my symptoms, he told me I needed to do a sleep study. It took 2 and 1/2 months to get in. They wired me up to record my brain waves, etc. and I went to sleep. Halfway through the night, they gave me a CPAP machine that they could control and I continued sleeping. Afterwards, they had a machine calibrated for my needs. They told me the reason I could not learn anything new was that I had no deep sleep and long term memories are only formed in deep sleep. My depression was because I could not dream and the mind usually goes through 3 dream cycles a night and without that, you are depressed.
It took me 3 nights to get used to wearing the mask, but I was determined. I told myself: "Others have done this, you can, too! It's just a case of getting used to the feel." After that I would wake up with a smile on my face because it felt so good to be rested. All my abilities slowly came back, but I had already tendered my resignation to retire and didn't change that. I had not wanted to become an embarrassment to the school.
I have used my machine all night every night ever since, except for 1 trip to the Boundary Waters where there is no electricity. I never returned because of that.
My new machine from February, 2015, records my sleep each night and sends in a report that I access later in the day. I have logged all the results and have ranked the scores and the number of sleep interruptions per night (AHI). The highest score you can get is 100. My most frequent score is 100, the next most frequent score is 99, then 98. You have to get at least 7 hours of sleep a night to get 70 points. It also keeps track of mask leakage. No leakage is 20 points. Any sleep interruptions under 5 / hour gives you five points. My most frequent AHI score is .2, followed by .5. If you only take the mask off once, you get 5 points. I have a large bladder and don't need to get up in the night, so I usually get 5 points. From an apnea point of view, that is what I think success looks like.
The mask leakage measure is a barometer for me telling me when to adjust the fit or replace the nose piece.
I know I am lucky compared to many because I could adjust so easily. I am a side sleeper and position the hose so it goes up the pillow and then over to the machine. I can turn from side to side and not have a hose problem. When it's time for sleep, I put my mask on, pull the covers over my head and fall asleep within a minute or so. That way, my wife can continue reading if she wants to. I'm in the dark and have all the air I need through my mask. This machine is very quiet and neither of us can hear it operating.
I do not understand the difficulties others have since I experienced none myself. My supplier has good advice if I have a machine problem, like hose leakage or something, so I can turn to them if something isn't working right.
What no one explained back in 2005 was the connection between sleep apnea and artery clogging. When you stop breathing, your heart starts going faster trying to get oxygen to the brain. Eventually, you get a jolt of adrenaline to make you gasp and start breathing again. Adrenalin irritates your arteries and that is dangerous, so your body lays down cholesterol over the irritation. My arteries were getting irritated by adrenalin and soothed with cholesterol. I got my machine in March of 2005 and in December of 2005 I was having an emergency quadruple by-pass due to my clogged arteries. That problem only surfaced when I asked my doctor in the fall of 2005 if I could try a different blood pressure med than atenolol. He said "Sure!" and put me on two other meds. When I got off Atenolol, I got pains in my right shoulder when my heart rate went up. The doctor tried a stress test and told me my EKG was not normal and that I should see a cardiologist and have an angiogram done. The angiogram found the blockages and they told my wife I should not leave the hospital and they wanted to operate that afternoon. The blockages were where the arteries branched and they could not use stents. I learned afterwards in cardio therapy that Atenolol masks the symptoms of angina--that pain in my right shoulder. I would never have known of my problem if I hadn't changed blood pressure meds.
Once I had that experience and realized how sleep apnea contributed to the problem, I became more determined than ever to use my CPAP machine faithfully any time I wanted to sleep--naps included.
Good luck on your journey!