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Cricket

Cricket
Joined Dec 2022
Cricket
Joined Dec 2022

Amber, Thanks for sharing. I've been diagnosed with a form of Dysautonomia a year and 1/2 ago. The transitional sleep apnea began about 1 year ago after a major surgery--at least that's when I first realized it was happening. I've had other sleep apnea issues for years. My sleep doctor also believes I may have narcolepsy as I go directly to REM sleep. I hadn't heard about beta blockers as treatment until your post. For me, anything that slows down my central nervous system exacerbates the TSA so I'm not sure if it would benefit me. Though, I actually have found two things that lower my incidence of transitional sleep apnea-B12 injections and PEMF therapy as well as when I do all my therapies that my functional neurologist prescribed. They are out of the box in their treatments but specialize in Dysautonomia and helped me get and stay stable. I have flares of the TSA just like I have flares of Dysautonomia, but they don't necessarily coincide. I take 6 mg of timed release melatonin, 200 mg L-theanine and Calm magnesium each night to get to sleep. I also find that I do better if I do a lot of physical exertion because I fall asleep quicker. We're all different and my sleep doctor said my issues are vey complicated and he suspects an autoimmune component. Anyway, I just thought I'd comment in case something in my experience is helpful to someone. I haven't conquered this yet as I'm still working through getting the right PAP therapy. I have failed so far on an APAP, but the sleep doctor wanted to try one more setting--and in the week since, I've been worse. I've qualified for a BIPAP at my last sleep study, so that's next. In the meantime, I'm going to try to be more disciplined in doing all the things that have helped.