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DanM

DanM
Joined Mar 2015
DanM
Joined Mar 2015

Hello @EnthusiasticRaspberryMandrill3407. I'm very sorry to hear you have been through such a process, and I hope things begin to improve for you. While I don't know much about the Canadian process you are attempting to navigate, I can attempt to provide some information that might be helpful. It sounds like your first test might have been performed in the home. Is that correct? If so, home tests are known to underestimate the severity of sleep apnea. This is because the reporting is usually based on the recording time (start to end) instead of actual time spent asleep. When there is EEG present that allows wake to be removed from the equation, the severity of sleep apnea usually does increase. Sometimes the increase is minor, but other times the increase in severity can be significant. Also, sleep apnea can change with age and other factors (medications, other health conditions, etc.). That might help explain why your diagnosis was worse with the in-lab hospital test. As for treatment, I am sure you know by now that CPAP is considered the "gold standard" for treating sleep apnea. However, there are options you might discuss with your physician such as oral appliance (dental devices) and surgical options. I am not sure what is available to you in Canada, but the Inspire implant has also been approved here in the U.S. and has been a successful treatment for patients with moderate to severe sleep apnea. Are there any other members who might have suggestions? Best wishes, and please do keep us posted on your progress.

Hi @JenL2015. I'm sorry to hear you are having such a difficult time with your sleep. Do you know whether a board-certified sleep physician read your sleep study and reviewed the data? This is important to make sure the sleep physician has the entire clinical picture of what is happening during your sleep study, and so s/he can make sure they agree with how the study was reviewed and scored. CPAP and APAP require a prescription that specifies machine settings and several other things for an equipment provider to be able to supply you with the treatment. Too little pressure will not treat snoring and sleep apnea, and too much air pressure can cause other problems. If you are willing to pay out-of-pocket if your sleep study does not meet the criteria for a diagnosis of sleep apnea, you might consider talking to the physician about whether treatment might help with your snoring and with consolidation of your sleep so you have less awakenings. I do know of patients who have purchased machines with guidance from a physician in an attempt to decrease snoring and improve the quality of their sleep. As for masks and pillows, most take some getting used to by any patient wearing them for the first time. As a patient myself, I speak from experience. I encourage you to talk to your physician about whether treatment may be appropriate based on your sleep study findings along with your other symptoms, and you may consider providing the information on UARS and snoring that you mention in your posting. -Dan