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Kyle.....feel free to use the post where it will do most good. Ed
Yes, it helps to be educated and informed about what ails you. I always tell people the 2 common CHRONIC conditions affecting many people is sleep apnea and diabetes. Since there is no cure for these 2 problems, and you will live with them for the rest of your life, it is in your own best interests to learn all you can about them, how they affect your life and what you can do to control and maintain your maximum health. This is where support groups and forums such as this play an important part. No doctor or health professional has the time or inclination to sit with you and explain what you need to know. Adhering to the therapy, understanding why and then being consistent with your regimen is critical to your well-being. The key is in 3 words...."education then motivation."
thi
In my case, they believe the problem could be tied to the C02 levels. The trigger for breathing is usually the amount of CO2 in your blood. When it gets to a certain level, your brain will have you take a breath. With me, they believe I require a higher concentration than normal in my blood before the trigger to breathe is activated. Since it takes longer to build up to a higher concentration, I hold my breath longer thus creating the central apnea episode. My "timed backup" kicks in after 5 seconds, and I exhale my CO2 and bring in fresh air and oxygen. Of course, we have all learned, everyone is different and what works for one may not work for another. I have been controlling my mixed/centrals for over 7 years and my apnea index readings average less than 3.0 episodes per hour which is very good control. My only problem is my machine is 7 years old but still working fine. I don't like the large co-pay I'm going to get hit with at some point so I'm trying to stretch out as long as possible.
Hi puffer: Mixed sleep apnea is not a common diagnosis, perhaps 10% of those with sleep apnea have these symptoms. People with sleep apnea hold their breath for maybe 10-20 seconds, people with central sleep apnea hold their breath for a much longer time. The concern is your oxygen level drops if you don't breath regularly and this can lead to heart problems. I have a bi-pap machine...when I breath in the pressure to open my airway is 12, and it is 6.8 to breath out. Since I stop breathing for a long time, I have an automatic trigger as part of my bi-pap which blows a breath into me, thus getting air into my system. This is a "timed backup". The average person breathes 12 times per minute, thus my "trigger" is 5 seconds. If the machine senses I don't take a breath within 5 seconds, it blows air into my mask. It is like a "ventilator" in the hospital, only it only blows air in to me. The machine is expensive...it cost $7500 but my insurance co-pay was 20%, still a lot. However, I;m still around and the machine does the trick. Hope this answered your question.
Never went camping so no need for battery. There are batteries available for almost all types of cpaps, they range from 1-3 nights but you can't use the humidifier as they pull too much power. Cost around $300-500 depending on type of cpap. My doctor told me do not be afraid if for some reason you can't use your cpap..you won't die. Remember, you probably walked around for years with sleep apnea and you're still here. You should use your cpap but no need to panic if you lose house power, etc. on a temporary basis.
From a traveler who has been on CPAP over 25 years....here are some quick tips...
Greetings to Will. Will, this is Ed from your sleep apnea group. Where you been? Haven't seen you in a long time. Thought maybe you died (LOL). Got a meeting coming up on Jan.27th.
Susan--hello. Your message will be given out at our next meeting. However, most of our members are seniors and not all have computers. I have to send out postcard reminders to many. But, I think there will be a nice response.
I especially like the research aspect...we need more of that to gain more knowledge about sleep apnea and other health problems that stem from or are caused by sleep apnea.
Hi everyone. Guess I may wind up as one of the seniors on this site. I have had sleep apnea for 25 years.....was hardly known that long ago. My original CPAP was very big, tall, made a lot of noise and needed a new filter every week...paid $5.00/filter, no insurance reimbursement. It also was bulky and weighed a lot. Things sure have changed. Was diagnosed with Mixed Sleep Apnea 15 years ago and now have been using a Bi-Pap with a timed back-up. It is small, quiet and has been working fine for over 6 years. I am also a coordinator for an AWAKE group for over 12 years. My apnea is totally under control and am doing great. Also developed diabetes probably due to my sleep apnea. I have never been overweight and try to keep active, although I am retired.
Just wanted to sign in and say hello.
