Ekontos

Poor sleep quality has been linked as a risk factor to many other health conditions. Here is an article from the Huffington Post that outlines the association between poor sleep and breast cancer. A potential question for Rank the Research? What do you think?

http://www.huffingtonpost.com/society-for-womens-health-research/poor-quality-sleep-a-silent-source-of-disability-in-breast-cancer_b_7268764.html?ir=Canada%2BLiving&ncid=tweetlnkcahpmg00000003

We have taken the first step to providing a more customized MyApnea for every member. You can now select how you describe yourself in terms of your experience with sleep apnea: are you a diagnosed patient; perhaps you think you are at risk of developing sleep apnea; are you are caregiver or parent of someone with sleep apnea; or are you a provider or researcher? Please visit https://myapnea.org/describe-yourself and select your role. In the future, you will see content and surveys that are more tailored to you and your experience with sleep apnea. Remember, your data has power and the more you participate in MyApnea the more you will help shape the future of sleep apnea research.

Health and sleep care providers are vital partners in the MyApnea.Org network. We are happy to announce that we have now made it easier for providers to refer their patients to MyApnea.Org. Interested providers can join the network via the new provider sign up page. After registering, providers can customize their own welcome page that includes a unique URL (web address) to share with patients. The MyApnea.Org team will then be able to offer aggregate de-identified data to providers based on members who joined via their personalized portal.

Our aim is to constantly improve MyApnea.Org based on your feedback. We are excited to announce the beta release of our new layout and design. Members who would like to test drive the beta release can select the beta option on their Account Settings page (top right of page). As always, please let us know what is working well and where you think we can continue to improve.

I love The Mindy Project and Mindy Kaling. Did anyone see this week's episode where Mindy had on her "sleep apnea mask"? What do you think about the portrayal of sleep apnea on scripted TV- favorable or unfavorable? Would love to here people's thoughts!

What are the symptoms or affects that impact you the most? What would you like to see tracked through tools on your personal dashboard in the Research Section? What types of research would you like to see conducted related to lack of treatment or treatment options and daily performance?

MyApnea.Org is a community built by patients and researchers for others to share and learn from one another. Your ideas about the tools and functions that you would like to see on the website and on your personal dashboard in the Research Section are important to us. Give us ideas on how to promote the website to others. The more members we have, the more we can learn from each other and contribute to future research.

We are thrilled to share that Sleepless in America, the first feature documentary produced by The Public Good Projects, will have its premiere on the National Geographic Channel on Sunday, November 30th at 8/7c. Come back and share you thoughts here with the MyApnea.Org community!

Hi grayghost4 and welcome! First, we apologize for the slow response on the survey. We are looking into the issue and believe it was due to server maintenance over the weekend. Second, since MyApnea.Org is considered a research study it is governed by the Institutional Review Board (IRB) at Brigham and Women's Hospital. In order for us to abide by the standards of medical research we unfortunately cannot allow medical advice to be shared among network members (liability issue)- hence, the posts are reviewed before uploaded. The specific goal of the forum here at MyApnea.Org is to allow network members to share their thoughts on where they would like research to go in the field of sleep apnea. What questions do you think need to be answered? We do want to hear from each and everyone of you and we want to provide a space that is a bit different from other forums that are out there. Thank you again for visiting and we hope you stay connected to the network as we grow and find answers together.

Hello! I am a member of the MyApnea.Org team and we are working hard to make this site a valuable and easy to use resource for all members. We are currently working on a site re-design to improve navigation and we want to know what you think about the research surveys. Right now we have offered one longer survey that asks all the important questions providers and researchers need to shape research questions and provide answers over time. Would you prefer to answer one longer survey or a couple of shorter surveys? Thank you for your input and for helping us build a better MyApnea.Org!