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Gerry

Gerry
Joined Oct 2014
Gerry
Joined Oct 2014

Top Topics

Re #6 above, and request for 3 top frustrations diagnosing and treating central/mixed sleep apnea, there really is a #1. Apparently there is no way to diagnose it and then adequately treat it. I had to go through all the surgical steps to eliminate obstructive sleep apnea to find out I was in the mixed/central group. That was difficult enough in itself. Then to find that nobody really knows how to deal with it and the local best people have to experiment with each patient and can offer little hope for improvement, let alone "cure", is very frustrating. I would be pleased to see some improvement as we try different meds, CPAP machines, chin straps, sleep studies, etc. As I have had several orthopedic type surgeries, I have convinced myself that anesthesia caused the initial onset of sleep apena in some way, as it came along with the timing of the surgeries and later in life. I used to wake refreshed and never felt the affects of apnea during the day. Since my brain waves are now "cappy", I have to think that the billions of neurons that combine to make trillions of connections have somehow been affected just enough to result in the central apnea. Have I talked myself into that cause or is there any research to back it up? If there is any other frsutration with treatment, it is the length of time between appointments and variety of treatment protocols. With other medical issues I tend to be proactive and with this situation I feel there is no sense of urgency from anyone involved, although it very much affects the quality of daily life.