The hope in UARS came from reading that it often presents with fatigue rather than sleepiness. However, this should be checked with UARS patients or real UARS experts, I'm also suspicious that sleepiness is not evident for me, altough my fatigue is very similar to a state of sedation. I've started to read some posts about UARS in cpaptalk.com, thanks for your hint.
About the compliance of the diagnosis with my sumptoms, I can say that I rarely feel sleepy, but almost constantly fatigued, spacy and foggy. These symptoms are very real, as I had to leave my job as engineer because my cognitive performance declined too much... I don't know if this can suggest UARS, but I've no other explanation after 4 years completely dedicated to searching for a diagnosis...
After discovering UARS, I took contact with a local certified sleep center asking to check for it, but they seem to consider UARS an obsolete diagnosis, maybe they include it in the world of apnea disorsers. Maybe, not sure because no specific sensor was used and also the nasal cannula was not considered foundamental. Of course, I need to make a second test in Italy, I'm looking for a doctor that can specifically check RERAs.
Thanks PatientVioletBear0961, my sleep study was executed without esophageal manometer and also the nasal cannula was not available because its signal was noisy.
They said that the breathing signals could be calculated from the oronasal thermistor and the pulse transit time.... I've read that Stanford is the best center for this diagnosis, but I live in Italy and I would like to be more confident in this possible diagnosis before planning a visit there. That's the reason of my questions about insomnia. Also, I experience profound and unexplainable fatigue rather than sleepiness. But the worst for me are the cognitive deficits, similar to those Joe describes in his posts.
@JoeBorelli Hello, I'm new in the forum and trying to know as much as possible about UARS. I've been experiencing fatigue and cognitive decline (bad working memory, short attention, slow thinking) for about 15 years. I've investigated all the possible medical conditions (including psychiatric and psychological) that could cause these symptoms but everything seems normal. Recently I've tried a sleep study, as I have breathing problems, snore and suffer from intense bruxism, but the result was negative (AHI=3). After reading about your story, I've started to hope that UARS could be the explanation and that the lab did not check it properly (I had 40 arousals/hour, defined as "spontaneous"). Please, can you say if insomnia is essential for suspecting UARS? This is not my case, I almost never wake up during the night. Thanks a lot for your help! Cristina
