IntuitivePlumFerret8480

Hi. I'm new here. I'm desperately looking for information to help with primary central sleep apnea. I was diagnosed about 18 months ago. Was tested for everything you could imagine before doing a sleep study. Suffered from headache, brain fog, severe memory loss, got lost while driving to familiar places, unable to concentrate, repeated stroke like symptoms. Did a PET scan looking for early onset of alzheimers. It was clear so they did the sleep study. There it was. Primary Central Sleep Apnea. AHI 50-70. I have tried CPAP, BiPAP, and ASV. The ASV did take the AHI to 35-40, but it blew up my stomach unbelievably. I was scheduled for admission to the hospital tomorrow, for the implanting of the Avery Diaphragm Pacing System. The doctors believe this will be a tremendous step toward having my life back. The procedure has been postponed now, because Blue Cross/Blue Shield wants proof that it is medically necessary. The surgeon and the manufacturer of the device are sending in supporting documents. Has anyone out there had the pacer implanted? I am so upset and depressed. I was daydreaming about how wonderful it would be to actually get some sleep....