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JWalsh

JWalsh
Joined Feb 2018
Bio

Barrie, Ontario

JWalsh
Joined Feb 2018
Bio

Barrie, Ontario

Hey all,

My name is John, I'll be 48 this year and I've been using my CPAP machine now for approx 10 years. I use the ResMed Escape EPR with a full face mask in size medium and I've had my tube insulated from day one. When I started using the machine I filled the distilled water reservoir and used the humidifier but it was just an annoyance and seemed counter productive as I was awake more often with moisture problems than with my Sleep Apnea. Needless to say I stopped using the humidifier and I can't say I needed it in the first place. After about the first year of using the CPAP I started getting a rash and flaky skin from time to time on my face where any silicone was in contact with my skin. My doctor gave me creams, I bought other creams and on and on it went with it getting worse day by day. It didn't matter how many times I cleaned it or even if I replaced the mask, the rash was there. Then it got to the point where it wouldn't go away at all and woke up one morning with a giant pimple on my face. When I attempted to burst the thing it left me with a scar on my cheek along side my nose. Then I discovered and bought just about every liner out there, but in the end they were all disappointing, useless and way too expensive to keep on buying all the time. That's when I resorted to making my own liner's for my mask out of socks. I went and bought a bag of socks and cut about 10 of them to fit. It took me quite a while to get the socks right and it definitely wasn't the best solution, but on some nights sleeping was almost good again while using them. Eventually the socks frayed, they would move and wrinkle during the night which would of course lead to leaks that would always wake me up and the socks always tickled my eye lashes making it difficult to even get to sleep. Another problem was what my wife had to put up with each night while I was having my regular fits of frustration. It's been a real struggle, for both of us. 

What I want to know is if any of you have found the "Holy Grail" of mask liners that have actually worked as well as they claim it does? I haven't found it that's for dam sure and I've tried them all. I'm hell bent on either finding something that will work or I may just have to create the dam thing myself like I did with my socks! It won't be a sock liner though lol. I'm just so frustrated and tired of being tired every day.

So here you go, I've created this survey on Google CPAP User Comfort Survey to find out what other peoples experiences have been like and I would appreciate it if you'd be so kind in filling out the short survey for me. If I ever do make the "Holy Grail" of liners it means that by filling out my survey you'll be on my email list of contacts so I can let you know right away when I have created the "Holy Grail" of liners. I would need of a group people to do testing on the liners of course and they would receive them absolutely free of charge, no shipping costs or anything. I'd send them directly to your door. The only thing I would ask from you is your feedback, your true honest opinions of the liner. You may hear from me sooner than later because I'm serious at this point where I'll stop at nothing to fix this problem. Good luck out there and I hope to read all of your answers soon. Thanks for reading my long rant! lol!

P.S. I also posted this on CPAPtalk.

John