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Welcome Clamalot......you make an important point. While apnea isn't "inherited", your body shape and bone structure are and so family members of people with sleep apnea should watch for symptoms of apnea. Snoring, memory problems and sleepiness are so common they often aren't recognized as a sign that something is wrong! Good for you for taking action and getting the whole family healthy.
WOW.....we recorded Sleepless in America and I watched it tonight. It was fascinating, interesting, intriguing and downright scary. It's only 9:30pm and I'm headed to bed to contribute 8+ hours to my sleep bank.
If you missed it, it will be on the National Geographic Channel again this Sunday, December 7 at 9 am. Set your recorder. You'll want to watch it again.
One of the researchers said "A good night of sleep versus a bad night of sleep is one of the biggest differentials in your quality of life". Have any of you experienced that? How?
Welcome to the discussion jsantunes78. I'm impressed you are playing the didgeridoo in only a few months, it's a challenging task! As SusanR mentioned, it's not easy to measure improvement. What did you see or feel to notice your apnea is "less common"? Do you happen to be treated with an autoPAP device? Is the pressure range lower after you've been practicing the didgeridoo? Any other didgeridoo players out there?
Interesting comments Kairosgrammy. I'm curious, can you remember what information or support might have helped you realize you were not as well treated as you could be? What clues might there have been to let you know you might not have been functioning through your daily activities at the best level you could be?
I noticed a post in the building MyApnea forum that may indicate more people with apnea may still suffer from sleepiness and insomnia than is realized. Maybe they don't recognize it as something that might be able to be fixed.
Great idea TruckerDad. I'm thinking the outcomes research question would be something like "How does the health of truckers using CPAP without heated humidity in cold sleeping environments differ from those who don't ?" There may be both negative and positive effects. What we need is a lot of truckers in the network to have a large number of people respond to outcomes research surveys. So the immediate question is how can we get lots of truckers signed up? Any ideas? The great thing about MyApnea.org is that it's not just a place to talk. The talk can be turned into real research with real impact for everyone. The larger the number of members completing surveys, the more impact the outcomes have which can result in more diagnostic and treatment changes for sleep apnea and sleep.
Hi Everyone and welcome to our forum. I'm one of the moderators and look forward to seeing all of your exciting ideas.
I noticed the TODAY SHOW is having sleep week beginning today and through November 14, 2014. I think it would be interesting to post what you heard that is new information for you, what you found most interesting and what questions you have after hearing the daily sleep pieces. You can go to http://www.today.com/ if you miss the show live. Let's wake up to sleep with the TODAY SHOW!
Hi Dolly, Welcome to MyApnea.Org and congratulations your dedication to treating you apnea. Since you are such a seasoned CPAP user and we see some "newbies" struggling, what do you think were the most important things that helped make you successful? What was/is most important about your experience that made you accept CPAP therapy and adhere to it for so long? Could you (and other users) rank your top 3 most positive influences and top 3 challenges?
This is a great discussion about central and mixed apneas. Central apneas can occur because of many different pathologies or reasons and can have different looking patterns of breathing on sleep studies. So it's hard to find one solution for everyone who has "central" or "complex" or "mixed" central apneas. Professionals even have a hard time sorting out all of the literature. There are many sites to visit to read about sleep apnea and every aspect of our health. The content may vary from spot on, to interesting, to unlikely, to downright dangerous. We should be cautious about taking any action or worrying about something we have read without discussion with our doctor. Our own medical problems are a mix of all the other things going on in our body and medications we are or have taken. Cures, treatments and concerns have to be considered in our own personal context. Read and learn. Then make a list of your own personal questions and concerns to discuss with your healthcare professional who knows you best. You've expressed frustration finding treatment success or an ideal outcome. I'd be interested to hear from you what you would consider ;
Maybe by sharing your responses, we can formulate a research question to make diagnosis and treatment options better.
Welcome PennyM!!!!!
Welcome and congratulations on taking charge of your health! Keep us posted. Who else out there has a story to tell?
