I worked for a time in a study as 'patient support;, meeting with new CPAP users and following up with them by email and phone periodically. While the study did not show 'significant' improvement in compliance from the
support, my own impression was that it did help. For one it helped me to better understand the range of issues experienced by new CPAP users. And the meaning of 'compliance'. And the care one must take to protect
patient confidentiality.
I have heard/read of studies that were far more successful with the 'patient support' model and hope to see more
studies undertaken so that 'patient support' becomes a regular part of care.
One way I improved my own use was to become attentive to comments by others and notice that
just about every group I am in has some number of folks with sleep issues. That usually includes some number of folks who do, and others who do not,use CPAP.
My machine got adjusted because there were several months when I was sending in SIM cards.
My machine now can get adjusted remotely because my newer machine apparently has wi-fi access both ways!
The compliance rate is low for a number of reasons.
I wonder how much follow-up is done as I bet it is not reimbursed as billable time. No proof just as suspicion.