On the MyApnea staff team working to improve the lives of sleep apnea patients
Boston, MA, USA
We just did the first $50 gift card raffle draw for the 108 people who have completed the new MyApnea surveys. Congratulations to the winner! We will have many more draws in the coming months for those who complete the surveys. Does anyone have any questions about the surveys so far? What do you think about the printable personalized report?
Thank you for your feedback. We're sorry to hear you were disappointed with the surveys. We forwarded your concerns to our research team and will incorporate your feedback into future versions of the surveys. As always, we encourage specific feedback on the MyApnea research and overall site from all our users. Our patient-research team is committed to MyApnea being patient-powered. Keep in touch, and feel free to share feedback anytime with the support team anytime: email@example.com.
Thanks so much for following up. If you email me directly, I'll resend you the email (unencrypted) with your permission.
Also, we are going to do everything we can to avoid this system in the future so that it isn't such a hassle for you all. We are grateful for your feedback and for your interest in participating in research!
Thank you for reaching out. We send encrypted emails about research studies through our research organization "Partners Healthcare",
which unfortunately requires you to jump through a few hoops. It requires you to initially set up and activate an account with a password. You can then use the password to access secure emails sent to you from Partners HealthCare. If you prefer, we can send you an “unencrypted” email that is not secure and could result in the unauthorized use or disclosure of your information. If you want to receive communications by unencrypted email despite these risks, Partners HealthCare will not be held responsible. I emailed you because you were randomly selected from the 12,000 MyApnea.Org users for a small research study where we are doing online focus groups to discuss the website this Sunday or Tuesday. Respond to my email if you want me to send you the info by unencrypted email!
To reiterate what Mike said, a good rule of thumb to make sure emails from us are not SPAM, is to look for emails ending in: @partners.org, @bwh.harvard.edu, or @myapnea.org email addresses.
Thank you all for your vigilance. Keep in touch!
Hi! When you mentioned singing, it reminded me of this myapnea blog post: https://myapnea.org/blog/2017/10/n-of-1-trials-the-case-of-the-didgeridoo
A didgeridoo instructor had the theory that playing this wind instrument could strengthen the upper airway muscles. A small experiment was done and the group that played didgeridoo lowered their AHI by more than the comparison group AND reduced daytime sleepiness. If you like trying new solutions at home, you might be interested in participating in a 'N of 1 trial'. Check out the blog and comment if you want to learn more. I think this is a cool way to get creative patient ideas/ solutions into the research world :). Curious what you think...