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SeaLady

SeaLady
Joined Jun 2022
SeaLady
Joined Jun 2022

It has been 5 years since you posted this, I hope you have answers and that you might update us all as to what you found out. But you are NOT alone.

I had NO water retention before I used my apnea machine, didn't notice it right away, but after several months the tech brought me a humidifier tank and eventually a heated. hose. Then I started noticing during the winter that my socks were leaving a lot of indents on my legs...........still didn't think about it too much, then one day I checked my blood pressure and it was wicked high. Doctor put me on fluid pills, blood pressure pills etc. BUT no one could tell me why this was happening. I got sent to heart, lung, kidney docs - tons and tons of tests, had my arteries looked at ultrasound of kidneys, I lived at testing places and seeing docs who all said you are fine - you are good. Well, NO I was not good, I could not breathe, I huffed and puffed doing anything. From the very first night I used my machine I have never gotten up to use the bathroom.

Nope it is not because I am peacefully sleeping the night away, I still only get 0 - 3/4 hours a night if I am lucky and when I get up in the morning, I do not need to make a beeline for the toilet, I do not pee out that much at all - so where is all the fluid I used to pee out going? Well it appears to be going to my swollen face, eyes sometimes swollen shut and to my legs.

So I finally started piecing the puzzle together that everything changed when I started using the machine. - of course when I mentioned this to my doc, the lung doc, the heart doc, yesterday another lung doc - they all say it is impossible, as does some tech on here - well really how impossible when so many of us are having the same problem.

I found out on line how to turn down the pressure of my machine, it was on 13 (I live in France so have no idea if the numbers are the same or not) I moved down to 10, then went down by .2 thru the 9's and am now at 8.8, I also lowered the humidity, switched back since it is warm now to the non-heated hose and I have gotten a bit better. I also do not know what else causes an "episode" to show up on your reports, if removing the mask does it, if putting the mask under my chin so I can drink some water? If adjusting? But no water what my episodes are generally all well past 1.0 - usually .5 - .8 so I think that must be ok?

I have some other health issues, I read if your Albunium is low it can cause leaking of the capillaries, mine was a bit low, but not enough to cause all this fluid, but what if you add air pressure to the mix, might you then get more leaking? The fluid from the water tank has to go somewhere - right?

So the doc yesterday also seems very skeptical of my theory, but how can things be one way one day and completely changed the next? She is prescribing a different machine for me - so am hoping it will help.

I also just found out I am histamine sensitive, it is amazing how many foods contain histamine, and this too causes fluid retention along with a whole other slew of problems.