While I expect that’s probably correct for some people, in my case over the last three years in particular I think I’ve had about every test a doctor can come up with. Everything comes back fine. No heart, lung, kidney or bloodwork issues. I’ve basically been left to figure it out myself. At least now I know there are others with the same complaints.
I’ve been using my machine for over 4 years and I’ve noticed the same thing. I can gain 6lbs overnight when using the machine and it’s all around my ankles, don’t get up during the night which can be a good thing, but I retain all the fluids. I have shortness of breath too which I think is connected. My lungs feel tired in the morning and it’s harder to do stairs. My sleep doctor says he knows everything to know about about sleep apnea and the machine and he’s never heard of this. Has no intention of looking either…
Hi all... I'm so glad I found this conversation. I am a new bipap user and have noticed my ankles, legs(esp. my right one) and hands swelling bad. My complaint is pretty much exactly like Cynthia's.
My doctors look at me like I have 3 heads when I complain about it. "Maybe it's the weather, maybe too much salt... here's some pills". But why one leg more than the other? Leaky veins. Go to a specialist. Ok, but why is it better and I pee more when I don't use machine? "I don't know ". .... and they are not interested is further pursuing the issue.
Can anyone tell me why this happens and if there is a fix other than not using machine? My pressure is limited at 9 and 5 so I get noise from the sleep specialist that it's set so low it can't be bothering me.
I have previously had all kinds of heart and lung tests that showed my veins are squeaky clean and no physical issues.
I'll throw one more issue out because I get the blank stare and laughs from my dr.
Every morning only when using machine.... when I wake up I get like a full body forced stretch that is ridiculously intense. It causes me at times to get cramps in both legs and all my muscles stay tight all day. It's exhausting and really annoying as I can't even move a leg without setting it off. It doesn't happen off the machine. All my bloodwork is normal.
Any insight on that would be helpful as 3 drs have no clue and aren't interested in helping.
Thanks.
