Hi All, My current diagnosis is Severe Complex Apnea. I've been working with a doctor and through the medical system for 6 months now, but I am yet to be treated. I'm getting frustrated. I've had 4 sleep studies, one at home and three overnight. The overnight has been CPAP, Bi-PAP and ASV. I don't mind the tests, but my current doctor and medical organization is not very responsive and I have to constantly call and followup to be sure the studies were scheduled and they are very slow to respond. I have now resorted to calling every day.
I know my case may be a bit unusual because it is severe complex and I'm not over weight or have any of the classic contributing factors. I believe I have had sleep apnea for years without being diagnosed. I am an engineer and business owner, always busy, but I am now at the point that the head fog and fatigue are taking its toll.
I live south of Boston so I am now looking at ways of becoming more involved in the amazing medical resources that Boston has to offer.
I expect to be on ASV soon, but I would like to find a provider who is more interested in my case as there may be underlying factors that should be explored in addition to the apnea treatment.
I hope the best for all in this community!
