I've been on a Cpap for a year now. Prior to my annual follow-up, I recorded my oxygen level at night while on Cpap for roughly 2 weeks. All recorded readings came back with oxygen still in the 70's and 80's. Oximiter was calibrated prior to use. Took results to my appointment. After being told all looked good in using/wearing/#events, etc., asked how I felt, etc. I was then asked if I had questions. Well YES! Here are my oximiter results I conducted in preparation of this visit. My oxygen levels appear to be low. I ask, "Any concerns?"
Here is one of my issues.....had I not recorded my oxygen levels, I would have been went off on my merry way with everything being good. Red Flag! I was also informed that upon receipt of my Cpap a year ago and following up 2-3 weeks later to see how I was doing, it never crossed anyone's mind to do an oxygen test. Is this not a normal practice? I feel like I've been at "Risk" for a year now.
After this annual visit, an in home oximiter monitor and recording was conducted by my DME company. Yup! It's below 88 for that night. (No surprise there)
I'm told they have orders to put me on 1 liter of an oxygen concentration.
I have a Resmed Airsense 10, however, they are sending me an Ever-Flo by Respironics. Looks like a whole different and new machine to me. Not certain at this point how or if it will hook up to my Cpap. And, this can't go on a plane. And, it's 31.5 lbs.
Here is my second issue....how is it that while the Cpap machine/apps provide "feel good "info. on days/times on wearing it, mask leaks, getting little gold awards for such and only provides one critical item...... providing number of events. Is oxygen levels not part of the whole issue in conjunction having x# sleep apneas?
I'm told by the DME company that I can't have a portable concentrater unless I needed it 24/7. Is this actually a true fact?
Here is my third issue....the lack of communication between the Sleep department, the DME company to each other and to myself. I even had to ask....."should I be seeing a Pulmonologist for any reason?" Not sure why, but they are setting me up with one.
Is it normal practice that "we" have to do all the asking, research and follow-up?
They told me I have OSA, however, my in-hospital sleep test states "Central Sleep Apnea". Wouldn't that require an ASV machine?
If I should be seeing a different type of doctor, what type would that be? What type of doctor is most familiar with Sleep Apnea?
Sign........."Frustrated" :-(
