sleeplessincali

I had my humidity settings at 4. This is on a ResMed. On a Phillips, my old machine, 5 was the max. On reflection, I realized that the ResMed was set for 4 of 10. Oops. I cranked it up to 8 and my dry mouth is much better. I may try bumping it up or wait a few days to see if 8 will suffice. I think I may still be feeling the residual effects of when I had it set for 4.

The soft cervical collar has arrived and I'll try that as well.

In case you missed it, I have been mouth taping and I had dry mouth with the humidity at 4 of 10. Much better with mouth taping with humidity at 8 of 10.

I have a follow-up appointment on Sept 14th.

Except for the Knightsbridge, they all pull your jaw into your face instead of up. Cannot tolerate them. The Knightsbridge will not accommodate my mask without customization.

I have ordered a cervical collar, but am concerned it will make my neck hot.

I've been on the ASV for 5 days. Definitely feeling better, though I know it will take time to get the full benefits and for the docs to tweak the settings, now that I am on a machine Kaiser supports (ResMed AirCurve 10 ASV). I did not have an SD card for the machine for the first 3 days, so I was unable to look at the data for that time, but have had an SD card for the past two. Not sure what graphs to show here for best feedback, but here is what I have. I know there is room for improvement. Have been having some mouth leaks. I'm trying to avoid dry mouth also. Just as likely to happen with a full face as nasal pillows (dry mouth), but more likely, in my case, to have a mouth leak with full face than the nasal pillows. Have been trying mouth taping, but am still getting dry mouth.

So, as far as my graphs are concerned, it's early days with the ASV and I'm not looking to tweak them myself. Just wondering what you peeps think will be areas of improvement that I can/should expect.

Thanks.

I communicated with the sleep doctor to get some clarification. She wrote back that my initial diagnosis of severe sleep apnea was made by a home sleep study. She suspects I had obstructive sleep apnea from the home sleep study, but cannot confirm for certain because a home sleep study cannot determine for certain if one has central vs severe sleep apnea. My subsequent studies at the sleep lab were on different PAP machines- a CPAP, a BIPAP, an ASV machine. I had centrals on CPAP and BIPAP which she suspects were treatment emergent central apneas (this is also called 'complex sleep apnea'). ASV seemed to treat my obstructive and central apneas.

I had my 3rd in-clinic sleep study recently. This time, they tested me with ASV, as my previous study indicated I had central apnea. The ASV study went well. Way better than my previous studies. At this point, I am being prescribed an ASV machine. It will be a rental. I guess this is to get more time with an ASV for them to verify this is indeed the correct treatment, before actually purchasing a machine. I'm not thrilled with the idea that I have central apnea, but am glad that I have a real potential path towards treatment and healthful sleep. It also seems the pressures are much lower than I've been attempting with my APAP, which makes it possible for me to use my nasal pillows again.

Because my first in-clinic sleep study went so poorly, I had another. This time, I shaved my head to allow them to tape the sensors to my head and adhere better. I also took a sleeping pill. Finally, I ended up in a more comfortable bed. I actually got 4 hours and 11 minutes of sleep, so they had good data. They tested me with Bilevel and Bilevel ST with BUR (whatever that is). My AHI was 48.5, with an Obstructive Apnea Index of 0.0, Central Apnea Index of 11.5, Mixed Apnea Index of 0.2, and a Hypopnea Index of 36.8. Because there's some indication I have Central Apneas, there will be a follow-up in-clinic sleep study to determine whether I have Central or Complex (?) Apnea. They stated there is some possibility that the machines they used could make it appear I have Central Apnea. I'm not happy that we haven't reached a solid diagnosis and treatment, but I am happy that we may progress to a solution because they appear recognize more needs to be done and that I am committed. They will be testing with ASV titration. Luckily, I have no history of heart issues, other than high blood pressure.

BTW: I've continued to use my Dreamstation 2 APAP in the meantime and it reports I have an AHI of 4 to 5. Given how restless my sleep is and how bad I understand this machine's algorithm for AHI is, I am not surprised at the disparity.

I was diagnosed with a machine that Kaiser sent me home with 5 years ago. It had a pulse ox and recorded audio. I don't know brand or model. The sleep clinic was not for diagnosis, it was for getting a better idea what the solution would be.

Last night, I put cover roll stretch tape over the clips so I'd have a harder time accidentally removing my mask while sleeping. It seemed to delay removal, but it still happened. Partial arousal is worse than waking up to consciousness. At least if I'm conscious, I am more likely to put my mask back on.

I'd love to have some sort of alarm that would wake me when my mask is off for a given period of time. No SO sharing my bed, so that's not an option :P

I got called in for the sleep study this past Sunday (May 21). Between all the sensors they attached to me, the overly firm mattress, problematic pillows, (unfamiliar bed) and my stress at getting good readings, I only managed to sleep for about 30 minutes according to the clinician. They still thought they got enough data to get me dialed in and also select the right machine, but I am exhausted. It seems likely it will be a BiPAP. They also fitted me with a couple of new masks. While the clinician could not tell me the pressure settings they put in that cleared my airway, I do know that it was over 20 cm/H20, which my personal machine cannot do. That pressure is BiPAP level.

Knowing that pressure was >20, I set my machine to 20 and wore one of the new masks. When it's on, it seems to help, but I've taken the damn thing off in my sleep. I'm thinking about taping the buckles with gentle adhesive tape to discourage removal in the night.

It'll take a couple of weeks for the doctor to review my results and come up with a prescription for settings and a machine.

I am concerned about how short the sleep I got and the amount of data they got, but I figure that, bottom line, with a new prescription, I can get a machine they support and can monitor remotely and make adjustments to my therapy.

Regarding the Libre 2 software on my iPhone, I'm running 2.7.3.3641. I regularly update my apps and I do not see 2.8.1.6120 in the app store. I appear to have the latest. Actually, I just found that the version you are mentioning is for FreeStyle LibreLink - US, and not for FreeStyle Libre 2 - US apps. I am using the latter.

I have an iPhone 11 Pro Max and iOS 16.5 and gave up on Signal Loss Alarms in the Libre 2 app a long time ago. It was constantly going off. I turned off the Signal Loss Alarm, as well as High Glucose and Low Glucose. I've left the Urgent Glucose Alarm on. Even when I get that alarm, I'm rarely that low when I double check with a finger stick.

Regarding the in-clinic sleep study: I'm on a list waiting for a cancellation. My study is complicated by my physical size (obesity) and because I have a seizure disorder. The size limits me due to they only have so many beds and toilets that will accommodate me. The seizure disorder requires they have someone monitor me one-on-one, rather than monitoring multiple patients.

My seizures have been under control for quite some time, but then, I don't know that I haven't had any during my sleep. I desperately hope this is not the case. I don't want to lose my driver's license.