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snuzyQ

snuzyQ
Joined May 2015
Bio

dx OSA Oct/2012. Husband and I are CPAP "duelies" for 6 years now. Respironics system one and Swift FX for her nasal pillows. Husband has ResMed AirSense 10.

SF East Bay Area, California

snuzyQ
Joined May 2015
Bio

dx OSA Oct/2012. Husband and I are CPAP "duelies" for 6 years now. Respironics system one and Swift FX for her nasal pillows. Husband has ResMed AirSense 10.

SF East Bay Area, California

You can find special CPAP hose brushes at any of the CPAP supply places online. They're very inexpensive. It's best to put a little unscented, biodegradable dish soap in a dishpan of warm water. Take your CPAP hose and hold it under water until the air bubbles cease coming out. Now take your hose brush and insert it as far as it will go and with a circular motion so as to get all the surfaces, slowly withdraw the brush. Repeat for the other end. Drain and refill the dishpan with warm water and rinse out your hose, using the same technique. Then, toss the hose over a shower curtain rod to air dry. Done once weekly, this is sufficient to make your hose clean enough to use. There is no need to try to "sterilize" the hose. Plugging up the ends of the hose is not a good idea. What gets created in doing that, are the perfect conditions for growing bacteria...dampness, warmth and lack of air circulation.

Also, all that is needed for dealing with your humidifier chamber is to toss the remaining distilled water out after your nights' sleep and turn the chamber upside down on a bed of paper towels to dry. You do not need to scrub out the humidifier chamber every day. Save doing that for once per week, if you must. I think you will find that the humidifier chamber can go un-scrubbed for the life of the chamber. It will not get build-up as long as you continue to use distilled water for you therapy. Please do not use vinegar or alcohol on any of your equipment. It leaves an unpleasant smell that can disturb your therapy.

In the health system that I'm a part of here in the states, the medical professionals offer CPAP first if the AHI is <15 and greater than five. If the patients balks, they then suggest a dental appliance. However, the health insurance will not cover the dental appliance, nor will they cover the follow up sleep study to see how well the appliance is treating the apnea.

My TMJ dental appliances and treatment cost around $5,000.00, but the expense keeps on above and beyond that due to the necessary maintenance biannually. That was all out-of-pocket for me.

I didn't get these appliances to treat my apnea, but a subsequent sleep test at home showed that my AHI had been reduced by 12, down to twenty-four. My health insurance covered that second sleep study because they wanted to get a base-level reading with my new appliance to see what AHI level remained and whether my CPAP treatment would reduce those remaining apneas down below an AHI of 5. It was an eureka moment. My AHIs today are usually in the 0.5 range.

I was truly out of options. I needed the CPAP, but couldn't do that because its' pressures produced TMJ in me and the pain from that was overwhelming. I had to have the TMJ Disorder treatment in order to tolerate the CPAP. The problem was solved my first night of dental appliance therapy with CPAP. No pain. I knew I had made the right choice for me, but it was a guessing game up until that point.

The trouble with the standard dental appliances issued for sleep apnea is from the constant moving of the lower jaw forward each night and then trying to coax it back into it's original position during the daytime and then repeating this with the each following night of therapy. This puts incredible strain on the TMJs and the whole musculature supporting the jaw. The muscles go into spasm and the pain from that is enough to keep you from eating and even from talking. So you go along hungry and isolated. But you lose weight...in some cases a lot of weight. Then, your brain becomes confused and begs an answer to the question; "Where does my jaw belong?". Your jaw seems to be floating in an empty cavern. Our brains crave a norm of some kind. So, the bite gets thrown off. Teeth get cracked and broken (our bites are powerful) with some teeth needing extraction. And the patient is left wondering; "How did this ever happen?" "Could my dental appliance treatment for sleep apnea be causing this?" And no one seems to know.

Perhaps you're an anomaly. No... you're not. You're just one cog among many, caught up in the machinery of the industry. Your solution in the end is to just take the thing out of your mouth. But the pain doesn't go away while your jaw is floating around in never, never land. Your bite never seems to find "home base" and you're left at ground level once again, with sleep apnea and no treatment and dental bills to boot. This happens more often than anyone is yet really aware of. If you have Medicare and have "failed" (non-compliant) the first go at CPAP therapy, Medicare no longer wants to invest at all in your treatment and you are left on your own. We have to be strong and advocate for ourselves in this sleep apnea business.

So, "B" follows "A" and "C" comes after that. When the dental profession finally catches on to this, there will surely be a revolution - and for the better. But, I'm not going to risk my health and well-being in the meanwhile, as the figuring-out process is going on.

Yes...that is how the auto CPAP works.

You will be benefitted by getting the free application "Sleepyhead" online, so that you can see your own sleep data. Make sure your CPAP machine has an SD card. If it doesn't, you will need to get one...and an SD card reader. I got both inexpensively from cpapXchange.com. It came in the mail quickly after ordering.

Install the SD card into your machine. With "Sleepyhead" on your computer (just follow Sleepyhead instructions to get there), and once the data has had a night of your CPAP sleeping to record what you did in your sleep, take the SD card out of your computer. Move the little lever to the downward position to "lock" it. Then, insert the card into your reader and the reader into the port provided on your computer. Once the Sleepyhead window is on your screen, click on the import button and a query will pop up asking if you want to direct the import from such and such drive. Click "yes". Then click on the appropriate Sleepyhead box to get your sleep data. It should all be there. Enjoy and learn.

When you are done with viewing, remove your SD card from the SD card reader, flip the little lever back into the up position to "unlock" it and reinsert the SD card back into your CPAP machine. You are now ready for another night of sleep data. Now you'll actually be able to see what you are doing at night when you are sleeping. It's like opening a present in the morning. The data will become useful in your interactions with your doctor when you notice something that might need some professional attention.

I wish you well. Hang in there.