I need help and my experience with doctors thus far as not been helpful, even after 10 plus years. I am only 31 but every day, no matter what time I go to bed, how many hours of sleep I get, I get uncontrollable fatigue about 5 hours after waking up. I try to "push through it" but I'm so drowsy that it feels like I am drugged up on NYQUIL. The only thing that helps is taking a nap. I fall asleep almost right away every time. My second bout of fatigue hits me around 7pm, although I can usually tough this one out until I go to bed at 11pm (fall asleep almost immediately) . I get up at around 8am every morning but NEVER feel rested. I may wake up once or twice (that I know of) but fall right back asleep. Even after my naps I feel drowsy, but at least it allows me to function for the rest of the day because otherwise I am worthless--I am exhausted, brain fog, memory problems and just overall feeling like I haven't slept in days. It isn't so bad that I fall asleep at the wheel or during eating, but there have been times I have been driving and almost got into an accident because I "wasn't paying attention" (just feeling really out of it).
For as long as I can remember I have always been "tired". During teenage years it was a "normal teen thing". Then I got into college and partied and was "sleep deprived". Later in my 20's I attended graduate school and had "adrenal fatigue" from stress, even though I didn't feel stressed. I feel like everytime I have been to the doctor regarding my fatigue, they write it off as "overdoing it", "stress", "depression", "adrenal fatigue" but I feel like it is more than this. I am currently unemployed, stress levels are low, yet it has had no effect on my day time fatigue.
It seems I have been to every doctor under the sun:
-Sleep study: was unremarkable
-PCP: put me on anti-depressants which made the fatigue 100X worse
-nutritionist: checked nutrient and hormone levels, put me on additional supplements which didn't seem to do much.
-functional medicine: did genetic testing showing "mitochondrial dysfunction" and "Thyroid disorder" (thyroid panel was normal, so was CBC with diff) have been taking CoQ10 and vitamin B complex with no change. genetic test also showed hypermobility
-chiropractor: helped with my joints to get me exercising again (has had no impact on fatigue)
-rheumatologist: No autoimmune diseases
-cardiologist: showed I have PVCs--they said this COULD Be contributing to the fatigue and they want to do a cardiac ablation
-acupuncture: didn't help
-eye doctor: got new glasses, didn't help
I have gone gluten free and try limiting dairy to almost none which also has had no change.
Does anyone have any ideas that maybe the doctors haven't thought of? It seems to have gotten progressively worse over the past ten years to the point where it is affecting my ability to socialize, hold a job (and do it well), exercise, have a successful marriage and even just function through the day. Mt quality of life is terrible and I'm desperate for advice...