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Myapnea Forum is Dying

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Biguglygremlin +0 points · 28 days ago Original Poster Sleep Enthusiast

This forum is dying because the people tasked with managing it are content to do nothing while it slowly languishes.

It could be saved and revitalized to continue supporting the global CPAP community and to preserve the vast wealth of experiences and advice contained in its threads but only the forum management team can authorize and enable that process.

I started a similar thread a year or so back and afterward, along with others, tried to initiate some actions to revive the forum but our efforts were rejected by what seems to be an obstructive and inept management team.

Dwindling Health

The only reason this forum has not faded entirely is because of the steadfast efforts that Sierra has put into the forum. If anything should happen to Sierra it would pretty much finish this forum.

This thread is intended as a wake-up call. Time is running out and it seems that, still, nothing is being done.

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ReggieN +0 points · 26 days ago

Two ideas in your post from a year ago will make a big difference:

  • don't lock old threads, encourage necroposting....I'm one of those "drive by" users looking for specific help at a specific point in my life and all the relevant topics are 1-3 years old. It would be great if I could post right on them and add to the knowledgebase in context.

  • send email notifications to posters when there is a reply to their post or on a thread they created. I've been checking back twice a day to see if anyone had advice on what I posted over a week ago, it would be nice to know I'll get a notification.

I would also add the ability to opt-in to receive DMs/direct messages. I wish I could have reached out and directly ping the people who had the same issue as me to find out if/how they solved the problem even if it was several years ago. Most people keep their email addresses for decades now, and likely would respond even if it was a "blast from the past". If they choose to opt-out of DMs or ignore the email that's fine too but even with a 20-30% uptake on DMs you breathe life into the community.

On the upside, I had trouble creating an account because yahoo mail won't deliver messages from this forum, and got pretty much immediate help by emailing support@myapnea.org so someone is interested, listening, and helpful. You should reach out to them with your concerns. As for not being able to use yahoo mail, I had to use a backup hotmail account instead. This is likely a tech issue with the domain and if they properly configure SPF and DMARC for myapnea.org the email issue will go away.

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Sierra +0 points · 26 days ago Sleep Patron

I think the biggest issue is that posters do not get any email to remind them that there is a response to their question, and then they never come back. I suggested that to those that manage the site, and I guess they are not willing to do it. The second issue is that new posters post images and they seem to go into purgatory for days, and may or may not appear at a later date. I guess it has to do with the spam filter they used. There was a recent post on ASV machines and I put a lot of effort into it, and there was a few posts, and now it has disappeared completely...

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ReggieN +0 points · 23 days ago

The lack of email notifications has to be a bug they have just never fixed. Right at the bottom of this page it says: "You may <unsubscribe> to stop receiving updates for this topic"

I checked my notifications settings and they all indicate that I want to receive emails, but I didn't receive any for this thread that I replied to, or the other one I started.

As I noted above I had to use a backup email account because it wouldn't send to my yahoo mail. I think email for this myapnea.org domain is just configured incorrectly and it has been placed on a bunch of spam blacklists and that is compromising the site's ability to notify people. I mean BWH is part of Harvard, right? They must have at least one techie keener who could tidy it up in a hour or so!

EDIT: Well, that theory was incorrect - I just checked myapnea.org at MXToolbox.com/blacklists and it is fine, not blacklisted at all. So the issue with sending notifications must be somewhere else within the forum software or the mailserver.

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Sierra +0 points · 22 days ago Sleep Patron

I have exchanged emails with those who control this forum and it is conscious decision. They have decided for reasons I really do not understand to not notify anyone by email when posts to their thread come in. Seems to me it is better to let each individual decide whether or not they want to be notified. That way those new to the form or making starting their first thread would be notified until they decide to unsubscribe.

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Biguglygremlin +0 points · 1 day ago Original Poster Sleep Enthusiast

There have been a number of discussions, both here and behind the scenes, culminating in some members of the board approaching those who are managing this forum.

I get the impression that the response those board members received was essentially:

Who do you think you are? It's none of your business! We are the experts. We are in control. We will decide what needs doing. Go away and leave us alone!

Those might be the standard responses to preserve power and control and, despite lacking initiative and tact, it might have been understandable if there was some evidence, thereafter, of purpose and progress but it's hard to see any significant or meaningful changes in the intervening months despite the favourable circumstances and increased needs and benefits created by this pandemic.

The continuing decline of this forum is not a surprise nor an accident, it is the inevitable result of decisions being made or deferred by the present MyApnea forum management team.

Please be advised that these posts may contain sensitive material or unsolicited medical advice. MyApnea does not endorse the content of these posts. The information provided on this site is not intended nor recommended as a substitute for advice from a health care professional who has evaluated you.