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Ekontos
+0 points
·
about 10 years
ago
Original Poster
Hello! I am a member of the MyApnea.Org team and we are working hard to make this site a valuable and easy to use resource for all members. We are currently working on a site re-design to improve navigation and we want to know what you think about the research surveys. Right now we have offered one longer survey that asks all the important questions providers and researchers need to shape research questions and provide answers over time. Would you prefer to answer one longer survey or a couple of shorter surveys? Thank you for your input and for helping us build a better MyApnea.Org!
I tried to submit to the form but with no success .... guess you are not up and running yet.
edit :
well I guess it is accepting new posts.... BUT why would it need to be reviewed by someone .... to make sure it conforms with the views of the medical community that sponsors the site ?
SECOND EDIT: I see you don't allow posters to format there toughs in the format they would like.
Ekontos
+0 points
·
almost 10 years
ago
Original Poster
Hi grayghost4 and welcome! First, we apologize for the slow response on the survey. We are looking into the issue and believe it was due to server maintenance over the weekend. Second, since MyApnea.Org is considered a research study it is governed by the Institutional Review Board (IRB) at Brigham and Women's Hospital. In order for us to abide by the standards of medical research we unfortunately cannot allow medical advice to be shared among network members (liability issue)- hence, the posts are reviewed before uploaded. The specific goal of the forum here at MyApnea.Org is to allow network members to share their thoughts on where they would like research to go in the field of sleep apnea. What questions do you think need to be answered? We do want to hear from each and everyone of you and we want to provide a space that is a bit different from other forums that are out there. Thank you again for visiting and we hope you stay connected to the network as we grow and find answers together.
Please be advised that these posts may contain sensitive material or
unsolicited medical advice. MyApnea does not endorse the content of these
posts. The information provided on this site is not intended nor recommended
as a substitute for advice from a health care professional who has evaluated
you.