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truckerdad57

truckerdad57
Joined Nov 2014
truckerdad57
Joined Nov 2014

Self-titration of CPAP pressures... or learning how to access the clinical settings menu of your own CPAP to adjust the pressure (or APAP range) or other settings normally only accessed by a medical professional is a controversial topic among moderators and forum administrators of other online sleep apnea support forums.

One school of thought is that only medical professionals should access the clinical settings menu and posts or information giving directions on how to access clinical settings should be moderated and not made available for public view. Forums and moderators in this school will moderate and remove posts giving direction on how to access clinical menus. The feeling that due to the potential adverse consequences only medical professionals should adjust pap pressures.

Another school of thought is that empowering cpap users to be able to take control of their own treatment is an important part of long term effectiveness of CPAP treatment. Forums and moderators with this school of thought will post exact how to guides and you tube videos of how to access clinical menus. This school of thought feels experienced pap users who know about potential adverse consequences can and should be able to make their own decisions on treatment. As the actual pap user they will know earlier and be able to make corrections quicker to avoid adverse consequences than waiting for and paying for an office visit to a medical professional for a simple settings change they can make themselves.

WHAT IS YOUR OPINION ON CPAP SELF TITRATION?

DO YOU THINK THIS MIGHT BE A GOOD SURVEY QUESTION AS AN OUTCOMES BASED RESEARCH INITIATIVE?

Personally I self-titrated early in my CPAP journey. I was using CPAP in sleeper berth trucks running them on batteries. Often I had issues with a drop in actual pressure due to low input voltages from batteries. Back then pressure settings were a set screw on the side of the CPAP. I would turn it up a little in the truck and turn it back down at home.

I've learned a lot more since then about the issues and problems messing with my own pressure can cause and now am in the moderate self-titration posts school of thought.

Post on this thread your experiences with self-titration and your thoughts on how forums should handle the question. Maybe we can generate a useful discussion here and attract the attention of the researchers.

How about we keep this thread to discussing self-titration of CPAP or APAP only. If you're using a Bi-PAP ASV or other form of assistive ventilator messing with settings opens a whole different can of worms and might warrant a different discussion as the potential adverse consequences are much greater.

Thanks.... Bob (aka truckerdad57)