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Joined Mar 2015
Joined Mar 2015


Thanks for posting your story.

I am an RN with a MS in med-surg nursing.

I started snoring loudly around age 40. At the time I weighed 110lbs.

It is just this year @ age 64, that the thought occured to me that I might possibly have a sleep disorder.

I had a sleep study in January and was very surprised to find out that I had OSA.

I agree that there needs to be an awareness that anyone can have sleep apnea. I have picked up extra weight in recent years, but I surely did not fit the profile for sleep apnea when I first started snoring, having excessive daytime sleepiness, and memory problems 20+ years ago.

Thank you for speaking out about your difficulty with getting a correct disgnosis, despite your medical background. I was able to get a diagnosis OSA on the first try, but adjusting to CPAP and getting results (nl range AHI) has been a huge daily challenge for me.

I agree that recognition of the problem is a big challenge for both health professionals and the general public. This experience has been a literal "wake up call" for me. I thought I was in very good health and had no idea what was going on with hypoxemia and sleep apnea during my sleeping hours.

I look forward to the day when screening is commonplace and there is general public awareness of sleep apnea and the associated risks.

Again, thanks for posting ablut your experience.

2sleepy...I look forward to the day when I can change my screen name to Was2Sleepy

Hi Kyle,

You asked. I will answer.

  1. Yes, I do think these summaries of key information are useful.

  2. I do not have any difficulty reading the bar graphs, but I think the new format might be more visually appealing and understandable to a wider range of respondents.

  3. I looked at all of the bar charts as I completed the original set of surveys. I expect that I would continue to do this, because I am a detail-oriented person by nature.

  4. Other comments:

    • I am not familiar with the Promis Sleep Distirbance Scale. I would be interested in knowing more about it.
    • It seems like these surveys are simply collecting basic data. To me what is missing is not asking people about what interferes were their compliance with CPAP, especially at 30 days, maybe earlier. CPAP in known to be an effective treatment for OSA, yet there is a relatively high level of non compliance. To me, finding out more about non compliance and addressing the issues could save lives and improve the quality of people's lives. I was disgnosed with OSA on January 26, 2015. Because of my background as a nurse, I took the results seriously and decided to work through whatever issues and obstacles arose. I have run into many barriers to compliance including obtaining equipment, issues related to the proper use of the mask and chinstrap, issues related to emptying and cleaning the humidifier (it looks very simple, but not really), finding out who could help me resolve those issues, finding out the plan for followup (who, what, when & where) was never mentioned to me. I have been using CPAP for just 24 days now, but the issues that have come up have been almost daily. One problem that I had was using the CPAP machine, yet having nightly AHI's that were close to my baseline with no treatment. One night I had a particularly bad night, I perservered and found out the next AM that my AHI was worse than my baseline with no treatment. I was able to figure out that I probably needed an adjustment in the pressure. I am thankful that I was able to figure out that I needed an appointment sooner than the 5 week followup. These issues may seem easy enough to resolve for people who are very familiar with CPAP, but not so for a newbie. I don't think my experience was very unusual, but after just 24 days of CPAP, I can see so many reasons why people might conclude that it is not worth the bother. Sorry about that very lengthy respnse, but to me, the key is with clinical reasearch moreso than collecting demographic data. Just my opinion. Thanks for asking. FYI, there is a typo in the line about night owls.

2sleepy ....hoping to remain compliant and get positive results from CPAP

Hi all,

I am "2sleepy," diagnosed with OSA at the end of January, 2015. I started CPAP just 2 1/2 weeks ago and have had frequent small, medium and large problems when trying to use CPAP. It was my lucky day yesterday when I found this forum.

Here is my most recent issue. I am using nasal air pillows. Last night after sleeping soundly for 4+ hrs., I woke up because my upper lip and nasal openings felt damp, irritated and sore. This is a new problem for me. Has anyone run into this problem with sore, raw skin where the interface comes in contact with skin? If so, any suggestions for avoiding the problem from getting worse and / or preventing skin breakdown? In the middle of the night, I did not want to stop the CPAP so I repositioned the mask and put a folded cosmetic pad between my upper lip and the air pillow. That seemed to work for a quick fix. The humidity level on my CPAP was set at 3 (scale 0-5) which is the regular setting that I have used without any similar problems. Thanks for any tips you can offer me.

Other than being "2sleepy" I have been snoring loudly for the past 20+ years. My husband of 30+ yrs. was unable to sleep next to me even wearing ear plugs, so we have been sleeping in separate rooms for the past couple of years. I know that my snoring is severe. It was rated 8/10 in the sleep lab. This was no surprise to me because both my mother and her brother are "notable snorers" in the family. It came as a big surprise to me to learn that I stop breathing while I sleep. My AHI was 14.3 during the sleep study. Yikes! That caught my attention, because I have always taken breathing for granted. I feel very commited to adjusting to the use of CPAP for health reasons. I can understand why many people abandon using CPAP along the way. Although it looks simple enough, easier said than done.

Nice finding a site where I can talk with other people who have been down the road ahead of me. I am surprised by the number of people posting here who have been using CPAP for many years. I had not even heard of it until a few years ago.