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Please read post #34 in Central/Mixed Apnea.....I'm too tired to type it out again....LOL!
I had the weirdest, most frustrating and confusing day yesterday when I went to see the sleep Dr. for the results of my PSG. He said there were no significant apnea events on my test. How can that be when the at-home test a year ago showed I had mild to moderate complex sleep apnea but mostly central....and it was read by a neurologist! The Dr. at the sleep clinic couldn't really explain it either other than to say that some at home tests are unreliable....no, really! However the test did show fairly severe leg twitches and I already knew I had restless legs. The Dr. said that alone is enough to disrupt my sleep and make me feel like crap every day. So I am very grateful I don't have to wear a mask but I do have to take medicine for the restless legs/plmd. I am trying Mirapex...starting with half a pill and upping it by half a pill every 3-5 days until it works, with a checkup in 6 weeks. If it doesn't work or I have bad side effects I can see him any time. If this doesn't work we try something else. The Dr. was very nice and said not to worry, that we'd figure it out. I'm sure we will eventually but sometimes it takes a long time to find the right medicine or combination of medicines. I've also had some weird reactions to medicines in the past. So last night I started with 1/2 a pill and so far it didn't help....had a really bad sleep.....maybe tonight? I'm still having a lot of weird neurological symptoms too so back to my regular Dr. Sorry about the long post but I'm still a little confused.
Hi Ramon. I've had allergies and sinus problems for years. My Dr. prescribed a nasal spray for me that really helps with the congestion. You can also try just an over the counter saline spray.
Hi. I'm 55, for a few more months, and I was diagnosed with Complex or Mixed Sleep Apnea one year ago with an at-home test. Because my apneas were mostly central I couldn't be treated without an overnight study. I finally had my sleep-over last night. I will get the results on Thursday and I'm curious to see how they compare to the at-home numbers. I hope to find an effective treatment since I'm tired of being tired, having no energy, and very bad short-term memory. I also have insomnia, anxiety issues, and some weird neurological symptoms. I used to be slim and active.....hoping to see that again one day! I really enjoy reading everyone's posts.
I did home testing for sleep apnea. The Dr. who read the test said I had complex or mixed sleep apnea. Due to the large number of central apneas, about 80%, I have to go for an overnight sleep test. I also have restless legs and bruxism.
Hi @TheresaS. I live in a fairly small city in Western Canada. I've never had any problems getting good health care before but I guess I've never really had any major issues before. I've been reading a lot online lately and Sleep Disorders seem to be kind of a neglected area of health care compared to some other diseases, etc. I am feeling better today....I saw my GP and she referred me to a private clinic nearby that says they can get me in for a PSG in 3-4 weeks. So lets hope they're not fibbing!
An earlier post asked what the top 3 frustrations were. I have to say today I am extremely frustrated. It has been almost a year since I was told I had Mixed (complex) sleep apnea after taking an at-home test. In April I finally saw a specialist and was told it would be 4-6 weeks for a PSG. Today was 8 weeks and feeling a bit frustrated I phoned the hospital sleep lab to ask where I was on the list. Imagine my surprise when I was told I would have to wait another 6-8 months! Since my sleep apnea is mostly central I can't be treated without the PSG. I started googling and phoning looking for a private clinic even if I had to pay for it myself. I found a private clinic close by that does referrals from Drs. and is paid by our medical insurance.....wait time....3-4 weeks! Top frustration.....why wasn't I referred to this clinic instead of the hospital lab? Why did I need to wait 9 months to see a neurologist who had already reviewed the at-home test and said I needed a PSG? Why couldn't I be referred straight to the private clinic? Not to mention I never did see the neurologist since he was on medical leave, I saw a respirologist who did nothing but refer me to the hospital sleep lab. I feel like I have wasted a year of my life with no treatment yet. Fortunately I have an apt with my GP tomorrow who can refer me to the private clinic and hopefully in 3-4 weeks I will get my PSG and start treatment. It seems like there is no communication between different Drs, clinics, etc and maybe some politics going on, to the detriment of the patients. I really, really hope that treatment goes smoother than diagnosis!
I also read recently that you should tell your dentist before any procedure that requires sedation. I'm very nervous at the dentist and needed some "sleep dentistry" for a badly infected tooth. My dentist confirmed that it is very important to tell him/her if you have sleep apnea.
It looks promising but I think they should be asking people to invest, not donate!
I have several questions for anyone who has Central, Complex or Mixed sleep apnea: Do you have, or have you had any symptoms other than the usual that people with OSA have? What caused your sleep apnea, or do you have any other diseases, etc? If you are being successfully treated what sort of treatment is working for you?
