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Welcome to MyApnea.org. There are many options including help with the CPAP so it works for you, surgical, oral appliances and others. It is very individual. One of the things this forum is intended to do is explore why some people don't tolerate the therapies they are offered. You could help a lot by telling your story in the forum. What is your apnea history? Why don't CPAP units work for you? What have you tried? Others with similar issues will comment. The solution to either go to another option or solve the reason CPAP doesn't work is very individual. Your doctor who knows all of your history is your best resource. This forum is not intended to give medical advice but you can bring information from the forum to help your doctor find your individual solution. Your journey to become treated can be compared with others that are similar, common successes identified and more individual treatment protocols created. Watch for future surveys, complete them and keep posting in the forums to make it all work. Welcome!
Welcome. Your best advice can be found in the flyer that came with your mask. The manufacturers provide the most up-to-date standard cleaning information for the materials used in the mask. If you no longer have the flyer, it can most likely be found on line on the manufacturer's website. Also, check the manual that came with your CPAP unit for humidifier cleaning recommendations. Always best to start with the best.
Welcome to the MyApnea forums. Can you tell us more about this type of program?
Thanks Vicki that is great information and a good primer on scientific studies. Can you translate that into how learning more about the effects of playing a didg could be studied in an outcomes research network ? If we could find a few hundred users who play the didgeridoo what would an outcomes study look like?
Thanks for joining us here! Do you and your colleagues get questions about CPAP frequently? Do you notice issues with the interface and initiate the conversation or does the patient?
You can search on CPAP liners to find some options. Some CPAP users have sensitivities to the materials used so changing brands or type of pillows might help. Some pillow users rotate between a mask and pillows. The CPAP provider sees many many patients and might be a good source of information for you. Do you think dentists in sleep medicine have enough resources available to them?
If you leave the cap off your bottle of Hydrogen peroxide the O2 will vaporize and you'll be left with water. Not sure what it might do mixed with alcohol. It's never a good idea to mix compounds like that I don't think. Rinsing your system with peroxide alone would clean it and residue would evaporate. Some alcohols leave a residue that you would be breathing along with the humidity on your next use. It would be interesting to list all of the different cleaning techniques and get some experts to comment. What do you all think?
Welcome! It's interesting about the feeling rested. We should always report that to our sleep professional to check the download and be sure the settings are still correct for you. But, when we start CPAP we have a big sleep debt because of the interruptions in our sleep to wake up and breathe. It normally takes about 20 minutes to fall asleep if we are well rested so it isn't unusual for new CPAP users to feel like they "can't sleep" when they become "normal". Also, in one or two nights we go from sleep deprived to well slept so we really feel the difference ....until it becomes normal. CPAP units are quite quiet now days. Sometimes a "noisy" one may indicate a mask leak. Your sleep professional can check that too. Your wife can help by going with you to an appointment and describing what keeps her awake. Keep up the good work getting used to it. Soon it will become just part of your routine like brussing teeth, getting dressed, wearing glasses/contacts etc. Welcome to the group. Keep us informed on what does and doesn't work for you.
Hi Cyndi, Welcome. Can you tell us a little about AWAKE? Is it available outside your area?
Great news Puffer!!!! That means we have two examples of different kinds of central apnea right here on this site. Your's is an example of how fixing or at least improving one problem (your obstructive apnea) also improves another problem (the one causing your central apnea). You add in the fact that you and every cell in your body are now getting more sleep for the time you spend in bed and your hard work to adhere to your CPAP just gave your body a BIG healthy gift! Congratulations.
Did you complete the surveys for your son? If not, please do. Many children and adults with Downs Syndrome have sleep apnea. Their challenges are great in many health arenas. Just remember that every cell in the body - heart, brain, kidneys, skin, eyes - needs the rest and restoration provided by sleep. Each cell has a sleep/wake cycle and does certain needed functions during sleep and others during wake. That is why this project is so important, so the individual needs of groups of patients can be discovered, explored and met. Keep up the good work with the CPAP and if you need help, keep looking, you'll find it. Encourage others in your Downs Syndrome group to join and complete the surveys so there are a lot of you to speak up and share information.
