We've updated our privacy policy.

PatientVioletBear0961

PatientVioletBear0961
Joined Oct 2015
PatientVioletBear0961
Joined Oct 2015

Hi Hope! Good to hear from you again. I, too, have been away from this forum for a long time, but just checked it again today and saw your note.

So, you still haven't been able to get a definitive diagnosis as to whether you have UARS? Maybe you should again contact the sleep doctor that you saw, point out that you are still having very problematic symptoms, and ask if the doctor can give you a definitive diagnosis as to whether, or not, you have UARS. I think that is what I would do, but another option is that you could consider planning a trip to Stanford to get a diagnosis. I hope that you eventually succeed at getting a clearer diagnosis.

I have made a lot of progress with my CPAP therapy, but I have not achieved therapeutic efficacy yet. So I am still living with daily fatigue and cognitive impairments. After much experimentation with many different masks and configurations, I did eventually find ways to solve all of the mask leak and mouth leak problems I was having, which felt like a huge breakthrough and accomplishment. Then I tried increasing the air pressure of my CPAP to see if I could find a pressure that is therapeutic for me. There is an air pressure above which the CPAP machine data indicates that I have fewer flow limitations, but I have little ability to tolerate that higher air pressure due to a different problem that it causes: I have found that at higher air pressures I get "aerophagia" and become painfully bloated. In other words, the CPAP machine pumps air into my stomach. So, that is the problem I am currently working on solving in order to progress with my CPAP therapy.