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Paulie

Paulie
Joined Apr 2015
Paulie
Joined Apr 2015

Hi Dopy696,

Thank you for your support and words of advice. I have a resmed machine got it back in 2003 which was a huge machine. It was a resmed machine with Nasel mask. I then tried a whole face mask and I used them for about six months and both did not help at all. Also, with my first machine the setting was automatic it will will go up or down depending on my breathing. Now I have a second machine which I gotten around 2011 and that machine is smaller and it has the same setting.(Sadly, I dont know if I am reaching rem) I now used a full face mask from Resmed as well. Again, the setting on my machine is auto setting meaning again depending on my breathing it will increase or decrease automatically. Once, I meet with my new ENT on Friday on November 10th I am hoping to find out what is going on and what is his prognosis..they tried to set up an appt with me with a medical supply company before I even met with the doctor I have advised them that did not want to do that yet until I speak with my ENT. I've had a good experience with one medical supply company and sadly, they are out of business and there is another one that I like but my insurance is not covering them so I have to go what my insurance are willing to pay a particular companies sigh...Anyways, I am hoping this doctor is not a quack like the rest of them..I am going to him the benefit of the doubt and hopefully he will stick with me and work with me to figure things out...I am trying to avoid taking medications to keep me awake...sigh anyways, thanks again and I will keep you posted.

by the way I live in Massachusetts, do you know of a good medical supply company that might be really good???

Thanks again

Paulie

Hello Folks,

I found this website a year ago not sure when but many of the information on here has been helpful. But I am hoping to find new information or reintroduce myself to this website and in the hopes to get some support.

I have been diagnosed with sleep apnea back in 2003 and have not had any success with the CPAP machines and mask. I have met with four different doctors and to no avail none of them have been very successful. Sadly many of them I had to give up on them because I feel they do not hear what I have to say. The first doctor I met three times and tried everything he suggested and to no avail nothing worked. But I used the CPAP Machine for two years and still no results so finally I gave up. I then saw another doctor around 2007 whom did a good job of doing testing and all it was his Respiratory specialist that messed things up whereas he didnt show up twice to help me get a new mask. So, I gave up on meeting with him. My Third test was done in 2011 by another doctor whom prescribed a new CPAP machine (Resmed) which has helped me stay asleep during the night but not giving me the good rest I need to feel good about myself physically. So, about a year or so I then visited another Doctor and all he did was read my old tests and then gave me a different mask which is the Nasal pillows type (my first one was a face mask) and that didnt work so I advised him and he says well lets try medication which I did not want to do first before we try different masks to see which one works or if the machine I have is effective as it should be. So, I dropped him. Yes it looks like I have no patience I do its the doctors that has no patience with me. Anyways, I am now meeting my fourth Doctor who's an ENT specialist and so far, nothing yet..I just finished my test so I will see him soon and see what we need to do. I hope he will find out what is the issue with my problems...all I want is a good night sleep and be able to function better during the day and not fall asleep anymore..sigh.

Well, thats my story and hopefully someday I will get better sleep.

thanks.

Paulie

Hello,

Please allow me to introduce myself, My name is Paulie and I am from Massachusetts.I just turned 50 this past December and I am a victim of sleep apnea for many years.

For the past 14 years I have been battling with sleep apnea. I am still struggling with it as I cannot find a good doctor that will help me resolve my apnea issues. I first started using CPAP machine since 20003. however, I have stopped using it as it was frustrating that I cannot get the results I need to get a good night sleep. I have stopped using the CPAP machine in 2004 which I gave up because I felt I was not getting anywhere. Starting 2012 I began using a CPAP along with a full face mask and after I met with a Doctor whom I thought has resolved my issues with Sleep apnea. Sadly, I have not been able to get solid results of getting a good night's sleep. I then met with another Doctor whom again I felt he was not listening to what I have to say at all

I am still using my CPAP machine which the only positive side is that it keeps me asleep throughout the night but I'm still having trouble staying awake throughout the day. I have given up on looking for a Doctor that will help me and be able to get a good night's sleep. Im trying to lose weight, and exercise as much as I can but sadly, Im not doing well in that department.

It is depressing that I cannot find a doctor that is willing to go above and beyond to help me and sadly that I have given up. I know I sound like a broken record but at my age I cannot get sick.

Well, thanks for letting me share my story perhaps I can get some good advice and or some support. I do have a friend who has sleep apnea as well. But we don't really talk about it much.

Paulie