Ruby

Member since:

Jan 15, 2015

Number of posts:

99

Reply to Nasal Pillow issue
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[-] Ruby +0 points · 5 months ago

Can you call your provider to see if they have any answers? It seems like we just get something to work and then it goes to pot. I hope you get some answers but I would start with your provider.

Reply to Cheapest place to get sleep apnea dental appliance
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[-] Ruby +0 points · 5 months ago

There are a lot of variables in answering this question. It depends on the type of appliance and what insurance is involved. Maybe someone else will have a better answer for you.

Reply to Is it dangerous
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[-] Ruby +0 points · 5 months ago

There is no reason that you cannot contact your doctor and press for a quicker response. This is your life and you have a right to expect treatment on a timely basis. With that said, there is also no reason to panic. In all probability, this has been going on for awhile. I had the same problem with my oxygen levels and although there is no way of knowing for sure, I think that I had the problem for a long time before finding out what was going on. Yes, you need to be treated but if you can't get in for a couple of months, it will be fine. If it bothers you that much, push for quicker treatment.

Reply to Panic Attacks/Claustraphobia/Insomnia
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[-] Ruby +0 points · 5 months ago

An oral appliance might be what you need. A friend of mine had the same issue with claustrophobia. When that horrible feeling hit he would open his eyes and wave his arms around to remind himself that he wasn't confined. I have no idea if that would help you or not and I wish there were a better answer for you. All the best to you!

Reply to New to CPAP machine - tiny, painful pimples forming around my nostrils
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[-] Ruby +0 points · 5 months ago

Sorry, I missed what type of mask you use. So the above reply could be spot on by trying a different mask. Best of luck to you!

Reply to New to CPAP
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[-] Ruby +0 points · 5 months ago

Lots of people that are new to CPAP have this issue so you are not alone. Setting your alarm clock doesn't help? Hopefully others will have some words of wisdom. But DON'T panic yourself into a heart attack! Just keep at it and it will finally pay off.

Reply to New to CPAP machine - tiny, painful pimples forming around my nostrils
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[-] Ruby +0 points · 5 months ago

There are cloth mask covers that might help with this. They are very thin and fit between your mask and your skin. Some are washable for a few times and others are disposable. It also helps to make sure your face is clean as well as cleaning your mask daily. Hope this helps a little.

Reply to Do I have sleep apnea? (My story)
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[-] Ruby +0 points · 5 months ago

Here's what I think. The stressful event could have played havoc with your sleep in several ways, some of which might have played out now. But the bottom line is that you are not sleeping well. So you have to figure out what is going on by trying one thing at a time. Sleep medication may get you to sleep and even keep you asleep but it may not affect the number of arousals you have each night. As you said, most of the time people aren't aware that they are having these and they DO affect your sleep. The only way you know (without another sleep study) is by how you feel the next morning. Personally I would try the mouthpiece first. If it works as it should then your arousals should decrease which helps you sleep better. But you have to give it time--it isn't a quick fix because you aren't used to wearing one.

The part that stands out to me in your posts is that you don't want to be diagnosed with sleep apnea. You had the sleep study done and it showed issues. It isn't a random diagnosis but a real one based on the study. It is very possible that you have had sleep apnea for awhile and didn't know it. That was certainly my story. I did NOT want to wear a mask and use a CPAP machine! But after learning all the problems that can be caused by NOT using it, I changed my mind. I wish I could help you more but all I can do is read your posts and answer the best I can.

In any case, you have a right to have your doctor answer your questions. If he does not want to take the time to explain or support you, then maybe you should find another doctor.

Reply to Could I be suffering from sleep apnea?
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[-] Ruby +0 points · 6 months ago

The only way to tell if you have sleep apnea or not is to have a sleep study done. My own symptoms were that I would wake up a few times each night feeling like I needed to take a deep breath. My breathing slows down and my oxygen levels drop to pretty low levels. However, I don't smoke and never have. It sounds to me like a visit to your doctor is a good idea.

Reply to Using Res Med Airsense 10 Auto with Go Zero Yeti 400
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[-] Ruby +0 points · 6 months ago

I am not familiar with this at all. When we go camping we usually have electricity so hooking up my CPAP is no big deal. I do have a friend that has looked into battery-powered machines but I have no idea whether it has been a fruitful search or not. Can you contact the Yeti people to ask them?

Reply to Do I have sleep apnea? (My story)
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[-] Ruby +0 points · 6 months ago

I am sorry if you thought I was dismissing your concerns or thoughts. I am not you and you are the only one who truly knows your own body. I was just trying to see if I could help somewhat. I do hope you find relief with this mouthpiece. Getting the sleep you need is so very important and you are certainly looking at options. Best of luck.

Reply to Just got an oral appliance
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[-] Ruby +0 points · 6 months ago

Everyone is different and that's exactly why there are so many mask types, appliances and machines. When you find something that works, then go for it and don't worry what others say. Congrats on finding what works for you.

Reply to Use of cpap question
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[-] Ruby +0 points · 6 months ago

The idea is to reduce the number of events as well as keeping your oxygen levels up where they belong.

Reply to Customized skin for cpap resumed airsense 10 auto set
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[-] Ruby +0 points · 6 months ago

Thank goodness! It's bad enough that it sits on my bedside table! When I was first diagnosed and really unhappy with the whole idea, a friend told me to put boa feathers on the hose to "glam" it up. Didn't do that but at least it made be feel better by laughing!

Reply to Do I have sleep apnea? (My story)
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[-] Ruby +0 points · 6 months ago

Mild sleep apnea is still sleep apnea and should be treated. A touch of hypothyroidism still needs to be treated. Taking a pill for the rest of your life is no big deal if it is doing what is it intended to do and you are better. Insomnia isn't always a part of thyroid disease so that may be why you didn't suffer with insomnia years ago. You may have several health issues that are combining to cause you to lose sleep or it could be insomnia is the culprit. Often when we wake at the same time each night, we have programmed ourselves to do so. We worry about it and "poof" it happens. It is also hard to deprogram ourselves if that is the case. You need to get your test results and learn what they mean in order to know what has to be done. Doctors may be reluctant to prescribe medications if your test results aren't severe but that does not mean you don't need to be treated.

If you think this is all stress related, then work on your anxiety either by medication or therapy. If that doesn't work then check out the other issues you have. But decide to do something that will help you. Good luck and let us know how you are and what happens!

Reply to Customized skin for cpap resumed airsense 10 auto set
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[-] Ruby +0 points · 6 months ago

I'm not sure what you mean by a "skin". If you mean the outer shell of your machine then I doubt there are any that are put out by the machine company--it would be off-brand items. I agree that they could be made to look a little nicer. My new machine does have some little flowers on it which just makes me happy! I think that some people do not continue their therapy because of the whole look of the mask--and that's beyond mask leaks, face marks, being uncomfortable, etc.

Reply to Question about upgrading a six-year-old APAP
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[-] Ruby +0 points · 6 months ago

What insurance tells you and what your CPAP/APAP provider tells you may be two different things. First, if your machine is working fine and you are okay with it then you probably don't need to get a new one. Whoever you get your supplies from should be able to test your machine to see if it is functioning correctly. Your nasal pillow and tubing should be changed at least every 3 months. Check with your insurance company to see what they will pay for and hopefully you will be able to find common ground.

I recently got a new machine because my old one was making noise and my insurance would pay. I just upgraded to the current model and like it a lot. It is slightly smaller and can actually send my info to my doctor without taking it or a card in. It also gives me limited information about my sleep such as number of mask leaks and how long I used the machine. Check with your insurance company and provider to see what they suggest then go from there.

Reply to Central sleep apnea and Heart Failure
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[-] Ruby +0 points · 6 months ago

I recently lost 20 lbs but my CPAP setting is still the same. I do know that weight loss can greatly help with sleep apnea but have not heard of this before--however, I am not a doctor. Can you get a referral for a second opinion from your current doctor or from one at Stanford?

Reply to Whats the lowest pressure someone can start at
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[-] Ruby +0 points · 6 months ago

Are you unable to get back to sleep once it ramps back up? How long have you had your machine and/or is this a new thing that is happening?

Reply to Ugly mask
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[-] Ruby +0 points · 6 months ago

My husband has NEVER made fun of me, thank goodness. His attitude is a lot like your husband--at least I'm not snoring. It's bad enough just having to wear it and get used to the leaks and face marks without feeling like Darth Vader! I do wish the companies would talk to the everyday person who has to deal with all of this.