Hi Velacook. Please look up , if you haven't already, a writer called Lorra Garrick. She did two articles on sleep transition apnea. She writes under Scary Symptoms. I think it would be good to get a hold of her and ask her what the treatment options are. She is in contact with two Drs whom I tried to contact with no sucess. I am trying to get her on linked in. See if you can be more successful and please keep me posted. Warm regards
Hello Velacook. Thank you for posting all the tips. Thing is I am not stressed. Infact I feel I have been in a good place more now then ever. On this actual forum visit each page and you will come across a couple people under the heading sleep onset or transitional apnea. They have similar experiences trying the cpap but unsucessfully. Its good to see what they try but unfortunely non of them return to update their progress. I tried tracing them with no sucess. Lets always stay positive that we will find help and relief.
Hi Obbyone. So glad you are been treated correctly. Were your symptoms same like mine. Apneas at onset of sleep mainly?
Really . Doesn't leave us first time users with much hope. This is an excellent forum though. Learning a ton. Just hoping these guys somehow come back on to tell us their progress.
Hi sierra. Where did P3000g go to? I noticed you were communicating quiet a bit with her about 7 month ago. I was reading the forum this morning. She is pretty much in the same boat as me with the sleep onset apnea. Interestingly she was onto to APAp machine with no sucess. Then I just see inactivity on that forum. Do you perhaps know anymore. Regards
Great to hear from you. I am completely sympathetic with what you are going through. In countries like ours very often we dont have the enquiring minds fron drs and sleep technicians. They always look for a slight obstruction and call it obstructive sleep apnea because its easiest. This kind of onset apnea is quiet problematic as you cant even get passed first stage of sleep so you become an insomniac. Not nice. Lets just pray your dr has an open mind and i hope to hear from you.
I need to find now a tech that has sleepyhead first n then take it from there. We all may have moment of apnea when we sleep but for the masses it doesn't wake them repeatedly keeping them up for entire nights. Armed with this information I will move forward. Cannot give up.
By the way at the onset of sleep breathing ceases for just a few seconds enough to arouse and wake up immediately. Can sleep studies record this considering its so fast compared to what the obstructive sufferers who still sleep during these episodes.. ?
There may well be some obstruction. Please read up on what transitional sleep apnea is. Ithink you will gain a better understanding of the struggle involving treatment. Almost every person that tried a cpap says it doesn't work. It may well be because it central or a mixed apnea. Infact one article calls it sleep onset central apnea . As for the sleep study, taking a sleeping tablet increases problems with obstructive sleep apnea but with sleep onset apnea it takes you past the struggle in the first stage of sleep. Some people on the forum complain of having to depend on sleeping pills to get any sleep at all. My technologit wasn't looking for such an apnea. She looked baffled when I asked her when did my episodes happen. I slept only four hrs that night. Seven hrs sleep was recorded on my test. Clearly either the equipment or the technologist was not up to the latest that would pick up any other apneas but obstructive. I am just hoping Someone from this forum with such an apnea shares their development as they have tried cpap and probably now moved to other options, hopefully successfully. By the way what confuses me is I thought losing weight helps obstructive sleep apnea. For me its done nothing.
My problem is not as straight forward as an obstructive sleep apnea sufferer. I actually experience an apnea just as I transition from wakefullness to the first stage of sleep. Thus its called sleep onset apnea or sleep transition apnea. This is unheard of in South Africa and Drs have no clue how to even approach it. Life has been pretty tough for the past 18 months. Just as I fall asleep I wake up immediately gasping for air. The constant arousals keep me up for days on end . I am doing research and was surprised to hear that I am not alone. I also learnt that a cpap machine is not the answer as such apneas is central. I been classified after a sleep study as having mild obstuctive sleep apnea. But all apneatic episodes occurrd in first few minutes of the little sleep I had only after I took a sleeping pill. That is just briefly what I am experiencing and would love to connect with others in the same boat. A few people were on the forum a while back .