In general, you can find out about the latest sleep research being done in sleep apnea by visiting a free service by the NIH call Pubmed. http://www.ncbi.nlm.nih.gov/pubmed. It will give you every research paper or abstract ever done on a subject. It will also tell you whether the full study article is available for free or if you need to pay for it. Another way to track the lastest research and see article in layman's terms is simply do a Google search for sleep apnea and hit "news." You can then set an alert that will be sent to you with as news happens on any topic you wish. As to how a researcher picks a certain subject or where what is done with the research is probably too broad to answer here.
At MyApnea, research topics are decided by the Network members and refined by our Patient Engagement Panel and then our Steering Committee, which includes people with sleep apnea. Some of the topics will be part of research grants that the MyApnea.org researcher pursue and others we will publish and suggest other researchers to pick up for their own research grants. For any data from MyApnea.Org that is used for research, we put the stipulation to the researcher that they need to come to the network for further ideas and then report back to the network once the study is published to discuss the results and allow an opportunity for questions. Hope that helps.
Here's a follow up story on Advisory Council Co-Chair Joe Borelli and his story.
Try wearing your CPAP while awake, watching TV or reading to help get used to it.
Hi Lee, thank you for your interest in the PEP. The official date for applying ended on February 15th. We may hold another round in the future. Thank you.
Hi Ruby, the Steering Committee and others are reviewing the applications now and we should be contacting potential members in the next couple weeks.
On February 11–12, 2015, NIH will host a workshop to discuss the opportunities and challenges around building a large research cohort focused on precision medicine. We look forward to hearing from several leading experts from many disciplines and sectors. While we are at capacity for in-person attendance, the event will be webcast live both days.
As an alternative to watching by videocast, we invite you to join by WebEx. WebEx participants can watch the videocast, chat with other WebEx participants, and submit comments and questions for consideration by workshop panelists. To join by WebEx on both days, log into the PMI Workshop WebEx event room with the password PMIWS. Limited capacity: first come/first serve. For technical support on the WebEx platform, please call 844-836-4357.
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For more information go here: http://www.nih.gov/precisionmedicine/workshop.htm
Glad to see you all here. Thanks for joining. Let us know what features, tools and resources you would like to see.
Welcome Scott. We look forward to hearing and learning from you.
The Patient-Centered Outcomes Research Institute (PCORI) intends to support the first randomized comparative effectiveness research trail within Patient Centered Outcomes Research Network (PCORnet). MyApnea.Org is part of PCORnet and funded by PCORI.
The trial will investigate the optimal maintenance dose of aspirin for secondary prevention of coronary artery disease (CAD) events in patients with known CAD. The research topic was selected from a number of topics suggested by all of the networks within PCORnet.
Do you believe that The MyApnea.Org Network should join this study and would such a study be of interest to you?