My adventure on this journey started about 6 months ago when I finally agreed to talk to my primary care Dr about my sleep issue... Actually it was my wife's sleep issues... She couldn't get good sleep because of all the sounds I was making at night.
From there I was sent to an ENT. The ENT then sent me to both an allergy specialist and recommended a sleep study. I already knew I had seasonal allergies so I had no issues going down that road. They did the back prick thing and told me I'm allergic to just about every tree, weed and grass they tested me for. I'm now getting shots to hopefully lessen the effects there.
It took insurance about a month to approve the first sleep study. I went in and they hooked everything up and off I went to sleep. They told me that if my numbers were to low that they would hook me up to a CPAP machine. I slept through the whole night but they never hooked me up to the CPAP.
A couple weeks later I talked to the ENT about the results and was told I would need another sleep study, this time with the CPAP for the whole night. Apparently during my first sleep study they said I had complex sleep apnea. There were several obstructive someway but about 1/3 of all my apneas were central apneas.
During this second study (which took almost 2 months for insurance to approve) the sleep tech was pretty much dialing in what type of CPAP settings I would need... As well as testing the different type of CPAPs and how they worked on me.
A couple weeks later I got the results back from the second sleep study and was told I needed to be on an ASV machine. It took the DME company almost a month to get approval and order the machine for me.
So about 2-3 weeks ago I went in to get this new found miracle machine and hope for the best. With no previous CPAP experience I just took what they have me and went home.
I received a ResMed AirCurve 10 ASV and a Philips Nuance Nasal Air Pillow. I guess that's the closest to what they used at my sleep study.
I was told to try and get at least 4 hours on the machine each night. So the first night I had high hopes of possibly getting my first full night's sleep. Not so. I woke up after about 2 hours with severe abdominal pain and lots of bloating. After I released a ton of gas I went back to bed and tried the mask again, since I didn't get to my 4 hours. Once again after 2-3 hours I was awake. So much for a good night's rest. I knew I had my 4 hours so off went the mask and bed to sleep I went.
The second night was pretty much the same. The third I had little less gas and bloating and was on the machine a little longer but woke up with my mouth wide open and my wife complaining about all the noise of the air leaks.
It was then the I tried to contact my DME supplier to discuss what has been happening. When I called I ended up at a voice mailbox. No response that day. The next day they called back but due to the nature of work I'm unable to answer phone calls. So we played phone tag for about a week. After about 10 days I managed to get an appointment for a mask refit. During those 10 days I did a lot of self education on the web and though trial and error figured out that the "air swallowing" or Aerophagia was my biggest issue.
Here's what I believe has been happening to me. I would got to sleep with my ramp up rates of 5-9 increasing to 10-15 and then as high as 25 during central apnea events. Air would be forced into my digestive tract during the higher pressures causing bloating. I would then burp causing my mouth to open. Once opened the constant high pressure wouldn't keep it open until I woke up with a dry mouth and lots noise from the air pressure leaking out my mouth. This would happen a few times each night.
During these 10 days of self education and lack of response back from the DME I went out on my own and picked up a chin strap. This worked great for 1 night. The next couple I would still burp but just my lips would open...still the same effect, dry mouth and waking me up.
So 3 nights ago I finally got in for my mask refit. I ended up getting a Dreamwear Full Face mask and ClimateLine tube. The first night was great. I had virtually no leaks. The second I must not have had a good fit as there were some air leaks. Last night went much better also with no leaks. I still have a dry mouth when it pops open to burp but it doesn't fully awake me. I just lick my lips, close my mouth and drift back to sleep.
I'm hoping over time that the "air swallowing" will continue to decrease as my body adapts and that I get more and more good nights of sleep.