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That does help.. I couldn't sleep with it on so I turned it off after an hour of tossing and turning.. Ill try to turn it off again today...also I have been getting really bad aerophagia I woke up with what felt like really bad burping and my mouth was super super dry. It impossible I should it lower it by a half cm or back to 8? or lower the maximum pressure?
Hi Sierra
Thanks for all the information. You have a been a true life saver- I hope I can repay the favor! Usually when I turn it off its because I woke up from something with my heart racing... I usually then go back the next day and see if I had an event that made me wake up like that.
I will try to turn off the flex- but the reason that I had turned it on is because I watched Dr. Barry Krakow's youtube video on using c flex for UARS patients. Any thoughts on this?
https://www.youtube.com/watch?v=rOophPt7DxQ
It won't hurt to turn it off though. I will definitely raise it to 9 today and turn off c flex and then see from there..
again, thank you, thank you, thank you
Image upload is now working... I have been increasing the minimum by 1 cm every week. Felt no difference at 7 but a huge difference at 8... almost like a 70% difference... but I still wake up a few times... Now I am thinking to bump it up to 9. My question is about the maximum I haven't really touched it... It seems on three of the days it went up to about 12 but not sure why it never went up to 12 when my minimum was lower. I posted an example of when it goes up to 12- you can see my breathing doesn't seem normal but the machine doesn't really record it as anything... if you see the one dated 26th at around 6am- this is a frequent thing that happens where I wake up and then when I check I see weird lines but no recorded event.. I am assuming I still should take it up to 9 but what should I do with the maximum? keep it as is? Thanks so much!! Let me know if you need any other images...
Ok sounds good ill increase the minimum by 1 cm every few days and then reduce the max.. I'll report back ! Thank you so much!
HI Sierra you are a life saver thanks for the advice- I appreciate it.... Ok I hope I'm reading it correctly its quite confusing but examples
had a flow limitation at 2:30 and right after pressure went up to 9.7 then down again to 7 after about twenty minutes are so but had an OA at about 2:48 so pressure was still 9 and stayed there and eventually went back down to 7... but sometimes there are no events and it goes up to 8.50 then 9 I continue to see this.. so for example I had an OA at 6:47 in the morning but pressure stayed at the minimum pressure 7. (I have bumped up pressure from 6 to 7 last two nights) However, in terms of maximum pressure I don't think I can see it every going above 10 (maybe just one day it was at 11 in February that's it).right now my maximum is 12. So I guess since I have bumped it up to 7 should I stay like this for a few days (total of a week to try it out or what?) then bump it up more if I still feel horrible? I also noticed woke up from opening my mouth I think I am doing that too. The only difference between minimum pressure 7 and 6 is I slept throughout the night....
I also noticed you recommended to someone with UARS to do the following (pasting it from another blog). What is this for me? is this c or a flex? and at what number should I put the flex? I have set it off last two days but I suspect its making my tmj worse but it could all be in my head.... I have already increased pressure to 7 as of yesterday...
Ramp Time: Auto - This will hold the initial ramp start pressure until the machine decides you are asleep Start Pressure - I would set this to 7 cm. This will ensure you are getting enough air to not get a suffocating feeling while going to sleep. You normally want the start pressure to be high enough that it feels easy to breath. If this seems like too much then set it lower. The start pressure cannot be higher than your minimum pressure, so to do this you would need to adjust your minimum pressure up to match your start pressure. EPR: On EPR Type: Ramp Only. This will cut the pressure back on exhale only while you are awake. After you go to sleep it will stop the cutback and make the pressure more effective. Since you need so little pressure you could also try it with the EPR on full time. EPR Level: 3 cm. This will drop the pressure 3 cm on exhale until you go to sleep. This makes it easier and more comfortable to get to sleep. If you switch the Type to full time, then it will do this all night.
Hi Sierra I have been using Oscar and have charts but for some reason I can't upload the images here.
Hi Sierra I just realized this reply has been hidden! for some reason I can't post any photos but in general AHI is between 1.5 and 2 but I began feeling horrible since January. For example yesterday had 4 flow limitations. 12 hyopneas, 4 obstructive and one VS2. they vary from day to day.
Hi All
I had been suffering from migraines and TMJ since 2008. Finally in 2018 I was diagnosed with UARS. I tried everything from nasal dilators to MAD devices and then I started doing radio and laser therapy on my soft plate and nose (its very narrow and I weigh 56 KG). Anyways finally in September of 2019 I started CPAP- it was like a miracle my migraines went down from daily to like twice a month. my fast heart rate and irritability went away. My pressure was at 5-12. Also I was on Nexium for severe LPR about 40 twice daily. I take melatonin and Claritin but when I started getting better I stopped the Claritin and went down on the melatonin (was feeling still perfect) then went off the Nexium end of November.. In January my symptoms returned full-fledged. I wondered if it was due to the LPR contributing to the apnea or vice versa so went back on it just right now. suddenly nothin is working. I use the4 dreamer pillow tried switching to a full face mask for few days I felt worse and then I switched to nasal pillows which seem to be fine but my symptoms are not goin away. Please help!
