Top Topics
Recent Topics
I guess I should have given some background as well. My husband has probably tried every CPAP mask known to man, but he becomes claustrophobic within a few hours and rips it off while sleeping. He has also had numerous surgeries on his nose, tongue, etc....all unsuccessful (one actually made it worse). It was VERY strange to me that they didn't think it was incredibly odd that there was SUCH a difference in back to side. However, my husband was so thrilled by the tennis ball suggestion vs another CPAP that he gladly took it.
His PLMD and my proneness to major insomnia are just getting to be so difficult. I have heard of the king sized boxed spring with 2 XL twin mattresses. I am guessing separate sheet sets? Has anyone tried this? Does it work? I hate to go to separate rooms, especially in our 40s, but sleep really is important, and I dislike him a whole lot less when he isn't causing earthquake tremors and snoring like a madman all night long lol. I can't see pramipexole as a long term solution to the PLMD, but I'm afraid the dr's next step will be a benzo. Has anyone had their PLMD go away once their apnea was treated? I'm hopeful of this, but as I said, I'm hesitant because he jerks just as much on his side, when he apparently has 0% apnea.
My husband has had apnea for years, but has just developed PLMD over the past year or so. He just had a recent sleep study, which showed him having 40 apnea episodes per hour while on his back, but NONE while on his side. He also had 0% time in deep sleep. His dr is recommending sewing tennis balls into a shirt to stop him from sleeping on his back. He is hoping this stops his PLMD as well. He has 20 jerking movements per hour. I actually haven't noticed the apnea lately (although he does have awful snoring). However, the jerking is AWFUL! He jerks whether he is on his back, side, or stomach, so I am hesitant to believe that it is being caused by the apnea, since he rarely sleeps on his back at home. Right now, he is taking .25 mg Pramipexole, and has been for about 6 months. He is now starting to have some nights where he jerks even when taking it (Augmentation, even at this low dose?)..... has anyone had successful NON-MEDICATION fixes for this? If not, any suggestions for spouses to be able to sleep with this? He is skipping the medication 2-3 days a week in order to not build up a tolerance, but on those nights, we have to sleep in separate rooms. If this sleeping on his back doesn't help, I think the next step is getting 2 beds that we can pull apart before we go to sleep :(.
Hmmm..I'm guessing you probably can't take this with the Pramipexole since that works on the Dopamine receptors as well. Maybe it's worth a shot with the supplements he's currently taking.
I hear you with the different sleep schedules! My husband falls asleep super early where I am a night owl. He then gets up around 4:45 for work, but starts to rootch anytime from 4 on. Then he has to let the dogs out and back in, and is in and out of the bathroom...ugh! Not to mention the loud snoring and jerking around half the night. I also sleep much better when we sleep in separate rooms, but it really does make us both sad. We may compromise with some nights together, and some apart for now.
I went and bought magnesium citrate and separate calcium and vitamin d/k3. I also got the Tri iodined with the 3 forms. I am REALLY hoping this works enough to get him off of the heavy duty meds and lets us stay in the same room. .We have been arguing over CPAP for decades now. He simply can't tolerate it long enough to even see the positive results :(.
I have heard of using magnesium, vitamin b6 and iodine supplement. I do not hear him holding his breath nearly as much as I used to.
He is a belly sleeper, so it's very hard for him to have all of the tubes and wires attached to his head. Due to a botched nasal surgery, he can't breathe from his nose well at all which is a huge part of the reason he can't tolerate the masks. He found that he would fall asleep ok, but would wake up an hour later feeling very claustrophobic and rip the mask off....every single one. He has tried full face, nasal, nasal pillow. He can't even remember all of the names.
He has had 6 surgeries without success and unfortunately cannot tolerate any of the masks he tried and I think he's tried every one known to man!
My hubby suffers from apnea, horrendous snoring, and periodic limb disorder. The apnea actually seems to be subsiding, but the jerking and snoring have reached the point where we are sleeping in separate rooms half of the time. My super light sleeping and tendency towards insomnia certainly don't help. Have any couples found ways to stay in the same room and still sleep well aside of using heavy duty meds? He is on pramipexole, and it works great for a few weeks, but then the dose needs to be upped. I hate for him to be on super high doses of that forever. Any natural supplements? I've heard of magnesium. If so, what dose?
