singingkeys

My events spiked some last night. Over the past 2-3 days, I wake up in the middle of the morning at like 3am. I've been asleep for a few hours and I wake up to look at what pressure setting I'm at. It is usually on somewhere 8-ish to 9-ish. I've seen up to 9.75. Sometimes I'm seeing spikes for 30 minutes or more that it ramped up to say 7 or 8 and stayed. I thought it was supposed to ramp back down after the event is cleared...?

Trying to figure out what is going on with that. AHI can average up to 2 sometimes and I may see a 1+ Central Apnea. I don't see that many events this morning, but it seemed like it ramped up to 8 and 9 for a long time this morning. Should I adjust my settings down or something? There were many times when I was drifting off to sleep again and it was like I just relaxed and stopped breathing (didn't even try) and then the pressure kicked in on the machine for some reason and the air wanted to blow out of my mouth and kind of choked me in the throat. It felt more like a Central to me, but that's obviously not supposed to happen as it shouldn't ramp with a Central.

I seemed to get air leaks here and there from around the nasal pillows using the medium, so I'm trying to large ones tonight.

I don't understand why my ramps are up to 30+ minutes long if I'm reading that correctly. Will increasing my starting and minimum pressure to something like 7 help prevent some of that and lower that Central and OA number?

I think I'm going to try the regular mode and see how that does, as well. Is there a difference in the pressure settings between "For Her" mode and regular? Is a 6.0 For Her the same setting as 6.0 regular?

Alright, so I'm getting pretty decent at navigating Sleepyhead. I've been upping my machine settings lately. I think I'm going to start off with around 5.8 to 6 pressure now with the goal of basically not having to ramp up as much when I'm asleep.

Wore it just under 3 hours this morning before I yanked it off during the night and I remember laying there about to put it back on and I was so tired that I fell asleep with the mask off. I woke up at one point to see that my pressure had spiked up in the upper 8'scm. Not "high" necessarily compared to some people, but higher than I thought. It seems to have stayed that way for a lengthy period of time, too. It looks like it ramped and stayed high to keep the airway open, or maybe it was the tongue it was trying to keep from falling back. The little bit at the end was where I tested it after I woke up and adjusted it up to 12 max with a starting of 6.

I presume that my lungs will strengthen a little and get more used to the sore feeling of 6. I see it as...the higher the pressure already is at, the less it has to ramp later.

Also, there's an odd thing that I've noticed in Sleepyhead since the other day. The results from 6/30 will show up in Sleepyhead as 6/29 for some reason. The machine date/time settings are correct. In some parts of Sleepyhead, you can see the date and it is correct. In other parts, it isn't. Just a bug?

I find sometimes that the warm air makes me a little hot. I keep it at 80, but may end up turning it down a little when it hits August, our hottest month. I'm actually getting quite used to the mask itself, but just fighting the band. In the picture, they show the guy wearing one strap on top of the head and one behind the head. So when I saw that when buying it, I thought, "That should be pretty stable!" Nope, as their instructions mention, you can put each band that way and it will actually loosen the mask. Or put both bands behind the head and it will make it the tightest. I use both behind the head.

I attached the machine to the wooden table at the head of my bed, about half of a foot from the bed. The table is about the same height as the bed. The excess hose hangs down between the table and mattress. For the hose, I run it underneath my pillow and leave about 1.5 feet of extra room while I'm wearing the mask so that I have room to move around and change positions without the entire hose going everywhere.

The first day seemed so intimidating. "How am I going to learn all of these settings and what they mean??" kept going through my head that first night. I do like the autostart feature so that I don't have to keep hitting buttons and I can just put the mask on. I have gotten quite comfortable with wearing it apart from the light soreness of the lungs that I feel in the morning for some reason. I would probably feel great if I could just keep it on for the whole night and stop taking it off.

I may have a very light touch of central. I do find that even when I have the mask on at night, there are times when it feels like my body just doesn't want to breathe and I stop for maybe 10 seconds while I'm awake. It is something that I can control physically, but seems to also be because I feel so lazy/tired that I don't want to breathe for that time. It makes me wonder if I do that while sleeping. I actually do that sometimes when I'm upright. It may very well just be because I'm so exhausted from all of the lack of sleep.

So far my "best" day was probably today. I still didn't wear it enough, but it gave the best window of what is going on compared to the past few days. It was a split day where I slept some that night, got up and then slept some later that morning. But I had the settings more of where I wanted them and I see a number of hypopneas/apneas. For some of them, I see odd numbers next to each event when I hover over it at a particular time stamp.

For example: Clear Airway (13), Hypopnea (10), Obstructive (25), Clear Airway (17), Clear Airway (12), Hypopnea (10), Clear Airway (13), etc. What do these means? Is that the length of seconds of the event or something?

I'm not sure what the best view window is to get the most detail visible for a particular day.

As for the Centrals...nothing shows up to give me details about that. Could just be the way I had the mask on that confused the machine or something. I don't see any Centrals in sleepy.

I've been reading through the manual for the machine and it talks about how the machine may not ramp up pressure during a central apnea event, but instead keeps the pressure the same. I know that central is that your brain/brain stem "forgets" to tell you to breath for a certain amount of time, so I can see how the APAP or a CPAP wouldn't be able to treat it in that sense. I suppose it is good that I don't seem to have much, if any (possibly just my pressure causing the small number of centrals).

I'm kind of wondering how long it will take to feel better in general, however. I still feel exhausted every day, have a very physical job for half of the day (lots of lifting and walking) and I work 50 hours a week every other week and 45 hours a week every other week. I seem more "alert" and feel better rested in general, but somehow I still feel like I'm half dead and in a fog at other times.

So generally I seem to keep the mask on for 3-4 hours before it either comes halfway off and I just instinctively pull it off while still mostly asleep or maybe I have a hypopnea/apnea and it kicks up the pressure and I pull it off sometime afterwards, not sure. Sometime tonight I'm going to look into the past 3 nights with Sleephead and see how many events there were and such for each night. I see general max ramps from between 8 and 9-something on average.

Lungs feel a little sore sometimes in the morning for some reason. I keep my start pressure and minimum pressure at 5.2 just in case it ramping up a little more is waking me up after I have fallen asleep. Max pressure is set to 10. The 5.2 seems to be the "sweet spot" for me where it isn't blowing so hard that my throat is trying to keep the air from blowing out of my mouth and yet the pressure is sufficient to not feel suffocated. Anything more than mid-5's and it starts feeling too strong for long-term.

Today I wore it some again last night (and pulled it off again) and then put it back on again this morning when I went back to bed, so a total of about 5 hours 17 minutes. Events per hour are 1.8, mask seal and humidifier show good, pressure showed as 9.1 this morning (it was low 8-something before I went back to bed for a second time this morning), 17L/min leak, AHI 0.9, total AI 0.5, Central AI 0.4.

I don't seem to have any issue with air blowing out of my mouth, but I'm learning little quirks like if I want to clear my throat with the mask on, I need do it during an exhale when the pressure is backing off. If I open my mouth on an exhale, it doesn't usually do anything, but if I do it on an inhale I'll get a little choking air feeling in my throat until I close my mouth.

So it looks like I have a slight amount of central showing up. Is that normal for pretty much anyone? I've been reading lately that sometimes CPAP (and I would imagine APAP, too) can "cause" Central Sleep Apnea by having pressure settings up too high or simply the Central Apnea has always been there, but pops its head up when the Obstructive Apnea is dealt with.

I am one who experiences pretty deep sleep sometimes. I wake up and feel like my whole body is slightly "moving/fluttering" even for a few minutes after I am up and walking around. It only seems to happen when I'm flat exhausted.

Alright, so I went through and took photos of what I saw on the machine:

Sleep report Usage hours 3:40 Evens per hour 0.8 Mask Seal :) Humidifier :) Pressure 9.7 Leak 14L/min AHI 0.8 Total AI 0.5 Central AI 0.2

Settings (Clinical) Mode Autoset For Her Max Pressure 10.0 Min Pressure 6.0 Mask Pillows Ramp Time Auto Start Pressure 5.6 EPR On EPR Type Ramp Only EPR Level 3 Climate Ctrl Auto Tube Temp 81F AB Filter No Essentials Plus SmartStart On

Earlier tonight, just for a few minutes while up and awake, I put the mask on to see what the pressure was like that I was using last night.

As I mentioned before, the 4.0 Start Pressure made me feel like I was struggling to breathe and get enough air in general. It made it feel like a lot of work. Last night was my first night with the APAP, so I had a lot of stuff going on, too much to do, went to bed late, had caffeine before bed and all sorts of stuff going on that certainly wasn't helping my cause for sleep. I didn't have a lot of time to understand the settings and such, just set it and put them on and played with it here and there before going to bed in order to get it to a tolerable level.

I stopped at 5.6 when I was playing with the settings because 6 Starting Pressure felt too high and a bit uncomfortable. 5 Start Pressure felt too low and not enough air flow/too much effort to breathe. Minimum Pressure of 6 (which it obviously kicked up to 30 minutes later or whenever I went to sleep - how exactly does it know when I'm sleeping vs awake?) and Max Pressure of 10. Now in my sleep report above, it shows a pressure of 9.7. I had the max set at 10, so was 9.7 the magic number that it stopped at to clear my apnea/hypopnea? 0.3 difference from 10 obviously isn't that much, but it didn't go all the way, so it must have cleared. Should I just leave that max at 10 or try a little lower?

So now that I have more time, I understand the general idea that there is the Starting Pressure (what it raises up to when you first turn it on), then the Minimum Pressure that it goes up to once you're asleep and the Max Pressure that it can go up to per the setting that you give it.

I'm wondering sometimes if my little choking events aren't happening by opening my mouth and the air basically trying to blow from the back of my throat and out of my mouth, probably pushing the soft palate forward. It doesn't seem to happen that much, but I have noticed that it does something similar when I open my mouth while upright and testing the pressure.

I think it is set up properly now...I just didn't understand the mask test part at first where it seems to blow extremely hard when testing. When I put the mask on, it ramps up from 0 to my Starting Pressure within a few breaths. The first two breaths are difficult I presume because it is isn't blowing pressure yet.

I'm just trying to figure out mainly what to have the Starting Pressure and figure out what is not enough vs too much. The 5.6, when I try it upright, feels like it is a bit too strong. Yet when it was down on 5 last night when I was about to go to bed, it didn't feel like enough.

How do people know what to set their minimum and max ramp to? I know that the machine won't ramp up beyond the max setting and may not even reach the max setting if the obstruction is cleared beforehand and it kicks back down. I'm just trying to figure out if it could have cleared the obstruction with say...7 or 8 instead of 9 or 10 given that it went up to 9.7. That could very well have been the cause of my gagging feeling here and there throughout the night, as well.

When I remove the tank and empty it every night to put fresh distilled water in...should I just wipe down the little bit of moisture in there with a paper tower or something? I see condensation in the upper part of the tank that I can't really get to in order to wipe it out. Should it be washed out with tap water?

I wore it for 3.7 hours when I went to bed last night. I took it off after that. I felt tired and irritated, for some reason in my sleepiness thinking that I couldn't turn over on my side (which I can and just dangle the mask and hose off the edge of the pillow). AHI showed 0.8 for that 3.7 hours when I checked it this morning. It said something like 10L of leak.

I changed my starting pressure from 4 to 5 before bed. Then moved to 6 starting pressure because I felt like I was suffocating and trying too hard to breathe in and out. So starting was 6 and I think minimum was 6 and max was 9.

I wake up sometimes with it feeling like it is making my soft palate in my throat flip and gag me or something. I sort of choke awake from the air being too strong or something. I don't know of those are actual hypopneas/apneas that it is correcting or what. My lung felt a little funny and sore this morning.

I don't understand why it doesn't ramp when I stop breathing on purpose to test it, for instance. 6 starting, minimum set at 6 and max at 9. If I'm up and awake and wearing it...breathing normally and then I stop, I expect it to ramp to up to 9 to clear what it should think is an obstruction. Does it wait x minutes before the ramp takes effect when set to Auto?

I went through the Clinical mode and changed all of the settings.

After a little while of playing with the controls and wearing the mask (not while sleeping), I adjusted the max pressure down from 12 to 10 because 12 felt overwhelming during the times when it just blasted on at full pressure. It may be that I'll end up adjusting down even more if 10 still feels too strong.

I guess I need more time to get used to the controls. It seems like it blows a very light amount of air even after I tell it to "stop" or hit the power button. In fact, hitting the power button makes it blast out air full speed. It knows when I put the mask on (because of the setting), but it also starts blasting air wildly at max speed if I don't put the mask on fast enough. When I hit the start button, I see it display 4 minimum on the screen (and I could take it up to 5 or whatever other setting is comfortable)...but when I purposefully stop breathing completely, it shows on the screen that the pressure is set on auto from 4-10...yet it never shows that it kicks up above 4 even while I cease breathing and just sit there watching to see what it will do and seeing if it will ramp above 4. Nothing shows up on the screen, but is it simply ramping and just doesn't visibly show what number it has auto adjusted up to in the middle of the event or what?

When I'm up for the day, should I be using "stop" or hitting the power button when taking the mask off to stop using it? Or both?

The times when it turned on to test the mask or before putting the mask on, it blasted air out at seemingly max speed and that seemed ridiculously high. The mask is getting good seal readings on medium pillows per the built-in mask test.

I found myself wanting to adjust the start pressure down from 7cm because my lungs felt weird (and oddly enough, my chest kind of "hurt" a little tonight after breathing with it while still awake and upright) and also it just felt "too strong" for some reason. I turned it down to the minimum of 4 just to see. I have read that some people feel suffocated, and I agree...that does feel suffocating. I played around between 4 and 5 for the minimum pressure. However, I still feel like the exhale is too hard to do for some reason. I have the EPR set to Ramp Only and to 3. What else am I doing wrong? Sometimes the exhale feels hard to do and other times it seems just fine.

Also, I hear a good bit of rushing air through the tube. Is that normal? Of course, the feeling of having air blowing into my throat also feels quite strange, if even a little sickening feeling sometimes. Regardless of my settings, it seems like when I hit start, it blasts air out at max speed and then seems to slowly kick down to the minimum. Is that a common thing that I just have to get used to or another setting?

It seems to blow a light amount of air even when the machine appears to be "off" or when I have hit the stop/power button...but when I hit start or put the mask on, it seems to blow at max speed even though I have the settings set. Should I set a progressive ramp time or something?

My breathing reminds me of Darth Vader. Do I have something set wrong or is that how it sounds? I'm getting the regular air purging out of the front of the mask plus the air when I'm exhaling. I guess I thought it would be a little quieter?

Got my machine today (For Her version for the lighter apneas/hypopneas) and the AirFit P10 mask with ClimateLine hose. Tried on the mask for a few minutes at various times. It feels reasonably comfortable. Not sure what the default size pillows are that come on it (medium?). Do they have some type of identifiable marking on each set of nasal pillows?

Masks questions: How tight should the bands be around my head and how far inside of the nose should these pillows fit? Should they rest just inside and enough to seal so that no air flows around the pillows and out of the nostrils? Or should they stick further in? The design looks like they should rest almost on the outside of the nose and just barely inside of the nostrils. This seems right, just not sure how far they should go in. I can already see that this thing is going to mess my hair up on a nightly basis with the strap going over the top of the head and behind the back.

Machine questions: There's a warning that says to not transport it unless the humidifier is empty. Obviously, water could dump everywhere. Is that because a bump/jolt could knock the humidifier tank of from the machine and get water all in the machine/case or will the water actually dump out of the tank somehow even while attached to the machine properly? For instance, if you had the humidifier full and just picked up the machine and moved it around or it got turned upside somehow...would water enter the machine without the humidified being detached? Should the machine be velcro'ed down to the table near the bed? If I'm sleeping and turn over onto the hose and it yanks the machine off the table, that's a problem. I have a little plastic rolling car next to the bed that I keep my alarm clock and such on. Should I upgrade that to a heavier wooden table and put velco on the bottom of the machine and top of the table to keep the machine from moving when the hose gets tension on it? I'm pondering if I should wait until tomorrow to try the machine all night until I can get a table that is more stable and some heavy duty velcro to keep the machine from being pulled off. Does anyone else use this method?

The hose is bound to get in my way while sleeping. I've had someone on here recommend using a hook/velcro to hook the hose to my shirt/pajamas while sleeping and keep it out of the way. What's the best way to do so?

I'm an AHI 5.2 in general based on the home study. In-lab study before that showed an 18 RDI. I have a mix of obstructive apneas/hypopneas. Over 5.8 hours, I had 23 obstructive apneas. The longest was 85 seconds and the mean is 34 seconds. The longest obstructive hypopnea was 29 seconds and the mean 23 seconds. So far, no central apneas suspected. I'm a 5.4 AHI supine, a 4.9 on my left side and a 3.1 on my right (seems a bit odd). I apparently don't drop down to below 91% even with the 85 seconds of apnea, which seems bizarre to me. I have gasped awake before feeling tingly from head to toe. I presume that was one of those longer events.

What's my best bet for settings? I'm trying to understand how the exhale works, as well. Does it blow the air continously or for x seconds and then step down in pressure for me to exhale before going back up in pressure for the exhale? How does it know when I'm trying to exhale or inhale? Or does it?

SD card: One was included and already in the machine, but how many nights does it store per GB? I haven't plugged it into the computer to get the GB size of the card yet.

I placed the order yesterday. They dropped the ball and missed the shipping window because the doctor's office was a day later faxing the prescription over. So I'll get it sometime early next week. I have to set it up for myself.

I have noticed that sometimes in the middle of the night when I am just laying there (drifting, but awake), it is like my airway just shuts off or something. There are times when I feel "too tired to breathe" when I'm just sitting upright in my chair after a rough day.

I feel like I may get used to APAP more so than the typical person. I feel sure that I have had this for about 20 years and I remember cognitive struggles and the general "not rested" feeling all the way back to my early school days. Doctors never recommended a sleep study. I wouldn't have gotten one at all had I not pressed for my GP doctor to give me one back in 2018.