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How frustrating for you! It sounds as though you are dealing with a situation rare enough that no one knows how to respond to your question. I wish I could be more helpful-mostly just wanted to respond so that you don't just hear crickets chirping. I think if I were in the same situation I would request a direct consult with the pulmonologist. There are so many layers of care in the sleep clinic, and I believe that the technicians and nurses are super knowledgeable, but you have a co-morbidity that is most likely outside of the usual care they provide. You might be getting the "canned" response to your sleep study results, which might require a second look from the doctor.
Dan, I just wanted to take the time to thank you for this particular post. Last night was my second night with the CPAP, and I dreaded going to bed. I did everything I was supposed to do in preparation. Even so, every time I put on the mask and fired it up, I was gripped with absolute panic, and felt as though I were suffocating. Around midnight I pulled out my laptop and started hunting for a forum where I could find support. I stumbled here, and happened to read your post. I resolutely went back to try again, and had a sudden epiphany. I went into Settings and turned off the Ramp function. Put on the mask, fired her up, and took a huge deep breath through my nose (I have nasal pillows). Wow! Sweet relief! "I can do this!" I thought. Lay back, and fell asleep. Thank you SO MUCH for being here. I am so excited to find this website, and grateful for the mentorship.
