I'm active with the American Sleep Apnea Association message board forums.
I see posts like yours all the time.
Imho part of long term success in dealing with sleep apnea is becoming an educated medical consumer. Knowing more about the problems symptoms and issues with your condition so you can advocate and ask questions of your treating sleep specialist.
Sometimes it knowing that it's ok to fire your sleep specialist and get a second opinion.
Oma.. Welcome to the Forums.
Your post opens a whole can of worms. First.... I'm not a doc. . I'm just a truck driver with sleep apnea who is involved with international abuse testing of cpap machines in semi trucks. So I've got experience in what you are asking about.
I will run a test cpap machine on bottled water and distilled water. I see how long it takes me to break it and why.
At home I test machines on tap water.
But to keep the legal and Irb gremlins from coming out I need to remind you that any information I give might be worth exactly what you pay for it. Nothing....
Next.... to keep the cpap machine manufacturers from getting mad I need to say you should always read and follow the manufacturers instructions for your cpap.
Ok.... now... There are other forums about sleep apnea where your question has been discussed at length.
I happen to be a big fan of America Sleep Apnea Association forums http://www.apneasupport.org/ in the Cpap machine masks. ... forum you could probably find a dozen or so threads started by other users on this topic. Stop by the Asaa forums to get a taste.
Distilled versus tap depends on how often you're going to be on changing the water, how clean is your tap water, how hard is your tap water, what make and model of cpap are you using, and do you have any medical conditions that make you catch upper respiratory tract infections easily?
The first trade off with tap versus distilled are the little bugs swimming around in any tap water. If it's pretty clean US water it's not a big deal. But if you are looking at using tap water while on vacation in Africa that might not be smart. If you dump and replace the water in the chamber every morning that helps.
I've seen some pretty bad cases of the green slymies from folks using tap water and not cleaning things.
My first winter on cpap I got a bad case of bronchitis probably from not being good about cpap cleaning.
So one vote for distilled water if you get infections easily.
The other problem is lime and hard water deposits in the humidification chamber. You can clean them out with vinegar and water. Be sure to rinse everything well.
The humidification chambers on some cpap are much easier to clean than others. ( Fisher Paykel Hc versus the new Icon) Some models have optional disposable humidification chambers (ResMed s9).
So if you don't mind dealing with lime in your humidification chamber that would be a vote for tap water.
For me I hate cleaning humidification chambers and don't like the smell of vinegar so I use distilled water whenever I can. On the other hand living on the road sometimes I run out of distilled water so I use bottled water and deal with the lime when I get home. At home I use tap water because I'm lazy and have an S9 with disposable humidification chambers.
Welcome to being a hose head.
Hope this helps.
Sorry to hear you learned about elevation and cpap treatment the hard way.
Hoser... hose head. .... apneatic....
Crusty old truck driver. .12 years on cpap now.
What do you call yourself as a cpap user?
It's nice to hear from another non home cpap user. I'm a long hual truck driver with sleep apnea who has been using cpap for 12 years now about 300 days a year in a sleeper berth equipped semi truck.
Often the most hard to address issues are the non medical barriers to treatment. Things like helping active duty military deal with the practical issues of cpap during deployment.
Making sure good accurate information on all kinds of things is part of successful long term treatment.
Hey... for camping. ....have you seen the new Transcend portable battery cpap by SOMNETICS? They've got a solar panel charging option. ... neat. I got a demo to try in the truck.
One long survey.
But have the option to save completed parts and come back to finish later.
Remember mobile phone users.
Could you get video clips of just the sleep segments and make a You tube link?
On a mobile phone trying to find just the right part of the whole thing is a problem.
When using cpap (or bipap) in cold ambient air conditions (below 40 deg f) have others experienced waking up with Uncontrollable shivering (stage 2 hypothermia)?
The larger than normal quantity of cold air into the airway overwhelming the body's efforts to stay warm. As specially designed pap are used in cold water immersion hypothermia cases for re warming it makes sense to me.
I've had it and it scared the poop out of me. I work with truck drivers who use cpap often in unheated semi truck sleeper berths and regularly get reports of this.
I can't find any research on the topic. The cpap machine manufacturers just refer to the technical specifications for the machine.
Could this be a potential research question?
This thread shows one problem with medical folks. Getting them to talk in plain English. ..lol
Short answer... nope. .it doesn't really work.
Then again I just saw a site offering a herbal product to cure sleep apnea. .. oops the FDA is after them.
There are lots of neat ideas for treating sleep apnea. You will want to do some digging.
Sorry no one has posted earlier. This is a new forum.
In general lots of people who start treatment of sleep apnea are able to loose weight more easily. When I first got a cpap I did.
The reasons are you are getting better blood oxygen levels while sleeping. That helps you metabolise or burn calories better while you sleep.
The problem is most folks are able to loose weight more easily. ..there is no guarantee.
I think you are one of the unlucky ones the fickle finger of fste picked. ...